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Date: | Tue, 2 Dec 2003 20:57:16 -0800 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Boy did I hit a nerve !!!
I got over 60 replies to my post in less than 5 hours;
30 in the first 2 hours alone! All positive, most
related their own experience with a
'reluctance-to-diagnose'.
So a summary is in order.
Point #1 - It would appear that for every
diagnosed celiac out there there are 4-5 GPs and
1-2 GI specialists that do not understand celiac,
the seriousness of the disease, its prevalance or
are simply entirely IGNORANT of the disease! Which
leads to ...
Point #2 - Until things change, celiacs already have
one strike against them being diagnosed: a
preponderance of missinformed or completelly
uninformed GPs and specialists. So, if you have
sufficient reason to believe you have celiac, be
prepared to DEMAND to be tested. Stand your ground
and take no BS from your GP or specialist. It is
a simple blood test ( with optional biopsy ) that
costs less, physically, emotionally and
financially, than life as an undiagnosed celiac!
Which leads to ...
Point #3 One person sent me what is possibly the best
suggestion for putting an end to this 'reluctance-
to-diagnose' mentality in the medical community.
The idea: If your doctor refuses to run the test,
on your next visit request the test again and if
he
refuses, again, demand that he put it in writing
and sign it; two copies - one for your records,
one for you to keep! That should shake up some of
his pre-conceived notions and help him get over
his
'reluctance-to-diagnose'!
Point #4 - As upset as we were that it took doctors
over a year to diagnose our son, we are in a LUCKY
minority! Many people have suffered 5-10 years or
more before they found a doctor or were able to
convince their own poor-excuse-for-a-doctor to
test for and diagnose their celiac disease.
Regards ...
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