Subject: | |
From: | |
Reply To: | St. John's University Cerebral Palsy List |
Date: | Mon, 1 Jul 2002 10:03:10 -0400 |
Content-Type: | text/plain |
Parts/Attachments: |
|
|
Exactly, Ken. Change happens at the grassroots level (even though that
phrase is tired, it's true). It never ceases to amaze me that most MDs know
so little about CP--for most, only what they retained from med school
lectures. For the folks who have a working knowledge of CP, they tend to
have pediatric specialties. As far as the pediatrician is concerned, the
"static" statement is true--they don't see any degeneration in their patient
population because they've outgrown pediatrics before symptoms present.
-----Original Message-----
From: Barber, Kenneth L. [mailto:[log in to unmask]]
Sent: Monday, July 01, 2002 9:55 AM
To: [log in to unmask]
Subject: Re: New web site idea--back to my original point
well since i did not know better i married and started a family. my youngest
son is 15 and now i am looking at "how the hell am i going to keep going
until he is out of school?" i believed that "it wont get worse crapola that
dr. feed us. these docs need to have their butts kicked. i went to see a
pediactric ortho. i wish he'd have believed that my problem was aging with
cp. instead he thinks it has to be a neck injury because "that is all that
could explain the global pain i have" (referral to spine center, another
round of referrals for every body. i could just throw up.} oh yes, there is
a neck injury you fool doctor, but there is also many other injuries too. i
wish i'd had this website to give him. and once it is up and going i'll
still get it to him. i have his email address, they still spout this wont
be any worse stuff.
|
|
|