Pam,
when my dr first told me at 32 that I'd be in a wheelchair pretty soon, I
laughed at her. I'd never heard what my dad told me; that my CP doc had
warned them when I was a teenager that this sort of a decline might happen.
FYI, as much as we dislike UCP for various reasons, UCP of the golden gate
helped sponsor a ten year follow-up up on those of us who were aging with
cp. I think we should all tell our stories on the website, so that folks can
see that at EVERY level of CP, and every type of CP, a decline in ability is
a sure bet unless you really work at restoring your body.
Like most of you, I was a dynamo in college, I worked my butt off for the
anti-nuke & peace movements.
I walked around, drove a car, rode an adult size trike.
Like you, Pam, I realize I just have no stamina to raise a baby or young
kids. And that's very, very sad for us, since we love kids. My advice to
young cp'ers, have kids while you're young!
I just told my job counselor I no longer want to be considered for the
quality of life interview job, and it was hard for her to understand why I
just don't have the energy to do interviews even with a speech device.
Mag
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