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Celiac/Coeliac Wheat/Gluten-Free List <[log in to unmask]>
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From:
Valerie Wells <[log in to unmask]>
Date:
Fri, 29 Nov 2002 15:49:00 -0800
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<<Disclaimer: Verify this information before applying it to your situation.>>

I posted a side note about my and my neice's lose ligaments & joints.
I've received quite a few "me-too" responses from list members.  Someone
responded by kindly supplying the name of this syndrome:   (EDS)

A couple of folks stated that they have loved ones with loose
ligaments/joints & were concerned that this means that they aren't
following the GF diet faithfully.  I didn't mean to imply that loose
ligaments & joints is a symptom of celiac disease or non compliance to
the GF diet.  I believe EDS could be a condition frequently associated
with celiac disease just as scoliosis, lupus, hypothyroidism, diabetes,
alopecia, etc.  I don't believe that the GF diet will have any effect on
joint stability (but who knows?  not me!).  I apologize if I mislead
anyone into thinking that loose joints are a symptom of celiac disease
which can be treated by the GF diet.

Here are some websites that deal with Ehlers-Danlos syndrome:

http://www.ednf.org
http://www.mc.vanderbilt.edu
http://www.ehlers-danlos
http://www.ceda.ca

Hugs, Valerie in Tacoma, WA

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