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Subject:
From:
Dana Marshall <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Fri, 29 Oct 1999 10:06:47 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (69 lines)
Bobby, if I am that person, have her send me an urgent email. I tend to get
a lot of spam, and may not have seen the post. :)

Dana

At 09:58 AM 10/29/99 -0500, you wrote:
>Kyle and Betty,
>
>         Kyle's post is somewhere around May, 1999. I know because I'm using
>part of it in the article I am working on. I did delete the part about the
>four F's.
>I am glad you re-posted, Kyle.
>
>         On another note, would either of you be interested in volunteering
>for another interview for one of my students. She is having difficulty
>contacting her person who volunteered. If Kyle or anyone else would liike
>to help her out,
>please contact me off-list. Thanks!
>
>Bobby
>
>
> >Betty,
> >
> >I had long speaks with my physiatrist at Ohio State University a couple
> >years ago.  I posted a long-winded dissertation on the list about those
> >conversations, but I seem to have deleted the post.
> >
> >Anyway, this guy (William Pease, M.D.)basically said that the cerebral
> >lesions are static, but the spasticity causes the joints (and all their
> >associated viscera) to degenerate faster than those in a "healthy" person of
> >the same age.  He likened it to driving a car with the tires out of
> >alignment--the tires will wear faster than if they were aligned.
> >
> >He gave me "4-F's" that were associated with increasing spasticity and pain
> >in SPASTIC CPers:
> >
> >fatigue (get enough rest)
> >fronts (move to an arid climate to avoid rapid barometric changes)
> >fat arse (move!  stretch those limbs!)
> >feelings (emotional upheaval and stress (as Bobby alluded to in an earlier
> >post))
> >
> >-Kyle
> >
> >BTW-if anyone saved that old posting of mine it might be good to repost if
> >you can
> >
> >
> >
> >-----Original Message-----
> >From: Betty Alfred [mailto:[log in to unmask]]
> >Sent: Friday, October 29, 1999 10:39 AM
> >To: [log in to unmask]
> >Subject: Pain
> >
> >
> >Howdy folks!
> >
> >I have what might be a stupid question.  I've been reading the posts about
> >the Baclofen pump, and I am wondering: is pain due to CP itself, or to
> >secondary issues as a result of CP -- like joint stress or whatever?
> >
> >Please forgive me for asking such a boneheaded question, but I would like to
> >learn more if I can.
> >
> >Thanks for being patient with me!
> >Betty

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