you should also look up a local chapter of TASH, center for independent
living, and there is a program through legal aid but i foreget the name.
Anthony Arnold wrote:
> To add to what Beth said (and Beth or somebody correct me if I'm wrong
> here), there's some place also called "Protection and Advocacy" which offers
> free conciliations to anyone with a disability and/or their family members
> to learn about rights and basically to friendly look out for them. I have
> worked with mine here before with different issues, and I'm sure if they
> were asked to, they would go accompany a parent to their child's IEP.
> Speaking of IEP's, that's also one of your parental rights, you can invite
> somebody to accompany you to the meeting. But however I would suggest
> taking somebody respectable and not a lawyer.
>
> Thanks,
> Anthony
>
> Visit me at http://www.ara1.net
> ----- Original Message -----
> From: Elizabeth H. Thiers
> To: [log in to unmask]
> Sent: Saturday, April 06, 2002 2:58 PM
> Subject: Re: Living On Own
>
> Kimberly, Pardon me for butting in. Do you live in America? There is
> this
> thing called the IDEA and it's not if the therapist's are interested in
> self-help skills. Your child needs them to access his school environment
> (lunch room, rest room, etc) you bet ya you can get this as an IEP goal.
> The goals can be small but, they can be part of the IEP, don't let them
> talk
> you out of it.
>
> beth t the OT
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Kimberlee Ames
> Sent: Saturday, April 06, 2002 1:05 PM
> To: [log in to unmask]
> Subject: Re: Living On Own
>
> Dear Pam,
>
> I was very interested in your response to Kathy Jo's request, and I hope
> you
> don't mind me asking, but I would really like to know who helped you with
> learning how to do the things that you are able to do. Did a therapist
> teach
> you, or your parents? I know this sounds like an odd question, but I have
> a
> 4 year old, and he has severe spastic quad CP/dystonia, and I would like
> to
> help him be as functional as possible. He cannot currently feed himself,
> transfer himself, etc. The school therapists don't seem that interested
> in
> teaching him self-help skills, and I was wondering if I should try and
> locate
> an outside therapist who can start working with him on that. He is very
> motivated, just limited physically. We are currently working on finding
> ways
> for him to communicate with assistive technology also. Thanks for your
> help.
>
> Kimberlee, mom to Stefan (4) and Alex (9)
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