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From: | |
Reply To: | St. John's University Cerebral Palsy List |
Date: | Thu, 28 Mar 2002 08:40:27 -0800 |
Content-Type: | text/plain |
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Dear Jenn And Everybody ,
Jenn, I am so sorry to hear this. I know the
feeling. Two of my best friends told me everyday
for sixteen years that I would walk and get over
Cerebral Palsy later in my life.
Kathy Jo Pink ,
(Who can take a couple of steps on her own.)
--- Jennifer Zubko <[log in to unmask]>
wrote:
> Dear Debbie and everyone,
>
> I am so disappointed. I got an e-mail from Paul
> Osborne today saying that
> they do not think I am acandidate for the Hart
> Walker because I am an
> independent walker, do as well as many of their
> clients when they are done
> w/ the walker. I had a very tearful
> conversation with Krista (one of the
> orthotists) and told her my reasoning for
> wanting the Hart Walker/bracing...
> to walk independently, to run to be upright
> like my peers. They have known I
> could walk by myself since I started contacting
> them 1 1/2 years ago. I just
> cry and cry. I want to be able to walk...
> without worrying so much about
> fatigue, falling, etc. I WANT TO GO TO THE
> MALL, BE INDEPENDENT, NOT BE IN
> MY CHAIRS, WALK W/ BIOMWECHANICAL
> CORRECTNESS/USE MUSCLES I NEVER HAVE. I am
> keeping my appt. on the 2nd, but think if they
> were not ready to make it for
> an adult they should just say so, not give me a
> bunch of bull when they knew
> I could walk independently. I have been telling
> them for 2 years almost.
> Just when I THINK THINGS ARE GOING WELL....
> ugh.
> I just want to walk with my hands free, and
> this is the HART MANDATE.
> Sorry just needed to vent
> Jenn
> who can't walk forr longer than 3 mins on her
> own/spends the majority of
> time in her chairs (power chair STILL BROKEN).
> Can't ANYTHING GOOD HAPPEN??
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