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"St. John's University Cerebral Palsy List" <[log in to unmask]>
Subject:
From:
Salkin Kathleen <[log in to unmask]>
Date:
Wed, 27 Mar 2002 19:57:00 -0500
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Reply-To:
Salkin Kathleen <[log in to unmask]>
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I'm sorry to hear this, Jenn.    Seems to me they would have told you this a
year and half ago, but maybe they've done some research since then to
convince them now it wouldn't work.  Anyhow, I'm sorry,  Jenn.

Kat
----- Original Message -----
From: "Jennifer Zubko" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, March 27, 2002 7:29 PM
Subject: Hart Walker disappointment


> Dear Debbie and everyone,
>
> I am so disappointed. I got an e-mail from Paul Osborne today saying that
> they do not think I am acandidate for the Hart Walker because I am an
> independent walker, do as well as many of their clients when they are done
> w/ the walker. I had a very tearful conversation with Krista (one of the
> orthotists) and told her my reasoning for wanting the Hart
Walker/bracing...
> to walk independently, to run to be upright like my peers. They have known
I
> could walk by myself since I started contacting them 1 1/2 years ago. I
just
> cry and cry. I want to be able to walk... without worrying so much about
> fatigue, falling, etc. I WANT TO GO TO THE MALL, BE INDEPENDENT, NOT BE IN
> MY CHAIRS, WALK W/ BIOMWECHANICAL CORRECTNESS/USE MUSCLES I NEVER HAVE. I
am
> keeping my appt. on the 2nd, but think if they were not ready to make it
for
> an adult they should just say so, not give me a bunch of bull when they
knew
> I could walk independently. I have been telling them for 2 years almost.
> Just when I THINK THINGS ARE GOING WELL....
> ugh.
> I just want to walk with my hands free, and this is the HART MANDATE.
> Sorry just needed to vent
> Jenn
> who can't walk forr longer than 3 mins on her own/spends the majority of
> time in her chairs (power chair STILL BROKEN). Can't ANYTHING GOOD
HAPPEN??

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