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Subject:
From:
Jennifer Zubko <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 21 Feb 2002 18:05:14 EST
Content-Type:
text/plain
Parts/Attachments:
text/plain (19 lines)
Hi Everyone,
Just a note to say I will not be having intrathecal baclofen pump surgery.
The team felt it did not help with regards to my pain. What hurts me
though, was that they caused me pain-- the doctor doing the injections
kept hitting my nerves, had a huge headache, and I could not differentiate
between the various and sundry pains. They also said they got the same
results as January 25th, but would not recommend surgery. I am very
confused, especially because I kept writing on my pain sheets that I could
not differentiate between pain, it was not my normal pain, etc. I don't
think they should have made jidgements when they were INCREASING MY PAIN
JUST BY INJECTIONS... IN BOTH THE PLACEBO AND THE REAL INJECTION HE HIT A
NERVE. I don't know if I should try for another doctor, go through the
testing again, etc.

Surprisingly, I am not disappointed though... Have not even cried...

What does everyone think?
Jenn

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