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Date: | Thu, 7 Feb 2002 08:26:10 -0500 |
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Jenn,
I don't know if this would help but my neuro has prescribed Zannaflex.
There's also Dantrium which I've taken in the past.
Kat
----- Original Message -----
From: "Jennifer Zubko" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, February 07, 2002 8:18 AM
Subject: Medications for Dystonia?
> Hello Everyone,
>
> As most of you know by now, my treating physicians/ nurses here in London
> now think that the majority of my probems related to excess muscle tone
> and pain come from dystonia and not spasticity. The selective dorsal
> rhizotomy got rid of the spasticity, but it is the dystonia that causes
> painful spams, constant movement, inability to sleep, etc. No one knew I
> had dystonic movements until after my rhizotomy. Now that I realize I must
> wait months to have the Intrathecal Baclofen pump implanted, are there any
> medications besides oral baclofen that have helped with regards to
> dystonic movements and pain for your children? I can't even describe the
> pain. I am taking morphine but even that has minimal effect because my
> muscles are so tight.
>
> I ask you not to include Baclofen in any lists you might make for me
> because I have developed tolerance to the drug. I have called the nurse
> who works with my neurologist about this and left a message. Figure it is
> better than e-mailing the man, LOL, but wanted your opinions.
>
> Thanks,
> Jenn
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