Welcome to the group, Tombo.  There's a mailing list for parents of CP kids
but I can't remember what it is.  Joanne?

Kat
----- Original Message -----
From: "tombo" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, February 01, 2002 9:38 AM
Subject: up around the bend-------


> aloha guys!
>
> my son shane (12 yrs.) has been diagnosed with CP (ataxic).
> unfortunately we came to this news late in the game & beyond
> being told "he needs more PT/OT" - i've been left to wonder
> 'what's next?'
>
> i'm doing the pediatric neurologist search & coming up short
> - few  & far it seems.
>
> a year ago he had orthopedic surgery on both feet to help
> correct his gait - his walking is now worse. i hope this
> doesn't indicate a possible deterioration in ambulation.
>
> behavorial issues - quite bizarre - have been addressed,
> taking the focus away from his CP.
>
> the horizon has that gloomy glow & perhaps dad (moi)
> should be checking into a monastery in tibet. keeks!
> until that time i was hoping you guys who have been
> "down the pike" a bit might shed some light on what
> i may expect "up around the bend!"
>
> peace & all good!
>
> tombo