Are any of the folks on this list using oral baclofen?

Here's what I want to know ....

Our daughter has been on oral baclofen for a couple of years.  When it was
first prescribed, the physician / nurse team said something about needing to
break past a 'threshold' dosage level, which would allow the baclofen to
pass the blood/brain barrier and so be effective.

I have the feeling that we've never reached that level - her spasticity is
still pretty extreme - hard, hard extensions, breathing difficulties,
extensions whenever she tries to make intentional movements, etc.  From my
perspective, all the baclofen she's taking is doing any good, since the last
'bit' that would be necessary to get through the blood/brain barrier isn't
getting there.

What I want to know is ... have any of the folks on this list experienced
'breaking through' this threshold level?  What should I be looking for, in
terms of a result?

We've had her blood levels checked to make sure that she's not getting toxic
from the baclofen.  She's okay that way.

On the one hand ... we don't want to give her more and more, seeking an
effect that simply isn't available.  On the other hand ... if we're
under-dosing, all the baclofen she's taking isn't getting any result, and
she might as well not be on the drug at all.

So please help ... what's your *subjective* experience with / on this drug?
What objective changes should I be seeing if it's working?  And in your
experience, is there such a thing as a 'threshold level', beyond which you
get a *significant* change?  I can always talk to the doctors about this,
but I'd really like to hear from folks with CP who have experienced this.

You won't be prescribing ... we're already working in good partnership with
a doctor.  What you *will* be doing is helping me understand what I should
be looking for.

Thanks,
Dave Wetherow
Vancouver Island, BC