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"St. John's University Cerebral Palsy List" <[log in to unmask]>
Subject:
From:
Salkin Kathleen <[log in to unmask]>
Date:
Thu, 21 Feb 2002 18:13:58 -0500
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Reply-To:
Salkin Kathleen <[log in to unmask]>
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I'm sorry, Jenn.  However it's your decision to make.  Only you can decide
if you can go through all of this again and risk the same results.  I just
think it's a shame you had to go through all the trauma you have gone
through.

Kat
----- Original Message -----
From: "Jennifer Zubko" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, February 21, 2002 6:05 PM
Subject: No Intrathecal Baclofen surgery


> Hi Everyone,
> Just a note to say I will not be having intrathecal baclofen pump surgery.
> The team felt it did not help with regards to my pain. What hurts me
> though, was that they caused me pain-- the doctor doing the injections
> kept hitting my nerves, had a huge headache, and I could not differentiate
> between the various and sundry pains. They also said they got the same
> results as January 25th, but would not recommend surgery. I am very
> confused, especially because I kept writing on my pain sheets that I could
> not differentiate between pain, it was not my normal pain, etc. I don't
> think they should have made jidgements when they were INCREASING MY PAIN
> JUST BY INJECTIONS... IN BOTH THE PLACEBO AND THE REAL INJECTION HE HIT A
> NERVE. I don't know if I should try for another doctor, go through the
> testing again, etc.
>
> Surprisingly, I am not disappointed though... Have not even cried...
>
> What does everyone think?
> Jenn

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