Jennifer, I hear you.   You've been through the mill, and you're
wondering when will I get mine?  I'm sorry the Hart Walker people gave
you hope then took that hope away.  It's not fair.   I've started
reading, Beyond Ramps, by Martel Russell.  In it she suggests the major
failing of society towards the pwd's is that society's ruling class have
no idea what it is like to live with a disability.  Thus it is with the
Hart Walker people.  THEY REALLY DON'T KNOW WHAT it's like...


-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of Jennifer Zubko
Sent: Wednesday, March 27, 2002 7:30 PM
To: [log in to unmask]
Subject: Hart Walker disappointment

Dear Debbie and everyone,

I am so disappointed. I got an e-mail from Paul Osborne today saying
that
they do not think I am acandidate for the Hart Walker because I am an
independent walker, do as well as many of their clients when they are
done
w/ the walker. I had a very tearful conversation with Krista (one of the
orthotists) and told her my reasoning for wanting the Hart
Walker/bracing...
to walk independently, to run to be upright like my peers. They have
known I
could walk by myself since I started contacting them 1 1/2 years ago. I
just
cry and cry. I want to be able to walk... without worrying so much about
fatigue, falling, etc. I WANT TO GO TO THE MALL, BE INDEPENDENT, NOT BE
IN
MY CHAIRS, WALK W/ BIOMWECHANICAL CORRECTNESS/USE MUSCLES I NEVER HAVE.
I am
keeping my appt. on the 2nd, but think if they were not ready to make it
for
an adult they should just say so, not give me a bunch of bull when they
knew
I could walk independently. I have been telling them for 2 years almost.
Just when I THINK THINGS ARE GOING WELL....
ugh.
I just want to walk with my hands free, and this is the HART MANDATE.
Sorry just needed to vent
Jenn
who can't walk forr longer than 3 mins on her own/spends the majority of
time in her chairs (power chair STILL BROKEN). Can't ANYTHING GOOD
HAPPEN??