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Subject:
From:
Kathy Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 26 Mar 2002 14:34:14 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (64 lines)
How old is this "law"?  Kathy Jo Pink





--- Jennifer Zubko <[log in to unmask]>
wrote:
> Just to add toYvonne's thoughts: They built a
> new convention centre and
> stadium at the University in my hometown. New
> buildings MUST BE ACCESSIBLE,
> have accessible seating, enough space between
> the aisles for chairs,
> wheelchair accessible bathrooms. NEITHER OF THE
> BUILDINGS HAD ANY OF THESE
> FEATURES, AND THEY HAD TO RIP THE BUILDING
> APART AND SPEND MORE MONEY TO PUT
> THESE THINGS IN... Very public buildings, and
> this was prior to the 2001
> Canada  Summer Games being held in the city. IT
> GOT LOTS OF PRESS FROM
> ACTIVISTS-- even I wrote a letter, and they
> spent millions of dollars to
> change things... SO YES, IT STILL HAPPENS, AND
> IT IS STUPID....I swear that
> maybe it will be my mission to be a disability
> rights activist and prevent
> these things...
> Don't really know what I want to do with the
> rest of my life at this point.
> Pain is a limiting factor. I am back on
> morphine-- 100 mgs/day and the
> clonazepam at night, though I have indicated to
> the physiatrist via phone
> that this is still not a great option. All of
> the pain meds make me so very
> sick... I have not found one to be better than
> the other. WHEN I SEE HIM ON
> THURSDAY, I AM GOING TO ASK TO BE SENT FOR
> SURGERY FOR THE PUMP SOLELY FOR
> PAIN MANAGEMENT. I don't know what he will say,
> but I cannot handle the oral
> stuff. I sleep all day and can't even remember
> my name/age.
> Are there any pain meds that have minimum side
> effects-- I hace tried Statex
> (am back on it), Oxycocet (did not really work
> for me except making me
> sick), and MS CONTIN (WITH BAD SIDE EFFECTS
> AGAIN). Does anyone know of
> other options?
> I know I am going to the pain clinic, but it is
> always good to go with
> ideas/suggestions.
> Thanks.
> Jenn


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