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Reply To: | St. John's University Cerebral Palsy List |
Date: | Sun, 17 Mar 2002 11:17:32 -0500 |
Content-Type: | text/plain |
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Dear Kat,
I think I might feel better about the second trial if:
1. HE DID NOT KEEP HITTIONG MY NERVES, CAUSING ME MORE PAIN.
2. I wsould have been smart enough not to listen to them and take my
medication
3. If they did the testing for the disorder they were trying to treat-- if
it is dystonia, must be done with external pump and about 6 times the amount
of baclofen. I still don't even know if I really have dystonia-- they did
not say a word to me-- so I need to go to another doctor about that. This is
not something I think Dr. Albright can prove/disprove on a five minute
video-- specific tests must be done to determine the different types, etc.
But if I have to stay on narcotics, I want s pump of some kind-- the side
effects are crazy.
Jenn
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