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        Here is a summary of quotations received regarding Celiac disease and
dizziness posted on 3/10/02:>
I received many responses and many ideas,thanks!!! Here are shortened
versions.
>I have vertigo also, and they don't know why.  I get a full feeling in my
ears as if I'm on an airplane.  It doesn't happen too often, and I find
that if I take extra iron, it helps.  My ferratin (sp) levels have been low
in the past.

> Have you been checked for Meniere's Disease?  A friend of
>mine was just diagnosed with it.  It's the inner ear balance thing and she
>gets bouts of dizziness, vertigo, off and on.
>

>  in my early days of CD diagnosis, and before I'd been on a GF diet for
any length of time, I too used to get the sort of dizziness you speak of -
the brain taking time to catch up with the movements of the head and eyes.
I would also get it if I looked up into the sky or towards the ceiling - in
other words taking my eyes from the level ground. >. Why I now get it no
longer, again I have no real idea, except that if it
>was indeed related to CD, then it may be that at that time the effects of
>the diet hadn't taken hold properly. This all sounds somewhat vague to say
>the least, but if it's of any consolation to know that at least one other
>coeliac has experienced what you're going through then this rambling has
>been of some help!!! I hope so.
>


>. I know that B vitamins, magnesium, and a few other
>vitamins are very important in healing nerves and the nervous system.
>>Certain nutrient deficiencies can cause all of the neurological
complaints you
>mention.  I caution you to not take the blood tests as the final word
--with some
>nutrients the level is kept constant in the blood, while tissues are
starved for it.
>Furthermore, celiac disease can cause
>malabsorbtion, and B-vitamin deficiency can result, not to mention
deficiency of
>nutrients like calcium and magnesium, which are needed for proper nerve
funtion.
>Depression and anxiety are also definitely linked to B-vitamins and to
calcium and
>magnesium.
> >It might be worthwhile to research into the nutritional treatment of your
>problems. In most cases, vitamins are quite safe, though, of course, this
is not true
>in all cases. Vitamin therapy has helped me get real results with my own
health, and
>I suffer from a lot of nerve and nervous system problems that are
connected to
>CD/gluten intolerance.
>


>>>Have you tried a low carb, paleo diet? See www.paleodiet.com, and
>www.neanderthin.com
>A possible yeast / candida overgrowth? I read that yeast overgrowth can cause
>dizziness. Read one of the books such as THE YEAST CONNECTION...
>
>
>>I used to get dizzy spells, they have gone away since I've revamped my diet
>  I used to get the 'rocking with the heartbeat' sensation
>too. A lot of it was more vertigo .
>>What I did around the time I got rid of the dizzy spells:
>>-- Calcium and Magnesium supplements (these help with anxiety too)
>-- Switched off polyunsaturated oils, esp. Canola (has a substance that
>causes problems for some people, and it does me). Use olive and coconut oil.
>-- Started using 'lite salt', which is half potassium salt. Low potassium
>can cause all kinds of issues, and celiacs tend to be low on electrolytes.
>-- Got better about taking my vitamines.
>-- Started keeping a really exact food diary (this didn't show what caused
>the dizziness, but it made me pay more attention to my eating habits in
>general).
>
>
>>to stop the fluid from building up in my ear, my
>doctor put me on a nasal spray called NASONEX 50 mcg.  This stops the
>swelling of the tubes to the ear and then the fluid does not build up in the
>inner ear, thus, no dizziness.
>

>>>I went through all these... I had dumping syndrome... a reaction to the
>bile from my liver hitting a sensitive intestine... look it up on the
>net..
>
>
>.>>> Our now 2 1/2 y.o. son
>was diagnosed with Celiac Disease when he was 17 months old. He also
>suffered from ataxia. His GI symptoms started when he was 8 months, and
>his ataxia when he was 15 months. Once he went
>GF his ataxia very gradually improved. We still see occasional bouts of
>it. We wonder if he is getting some gluten by accident.
>Do you think you could be getting some accidental gluten? If you
>frequent this site, you know how many things can have a small amount or
>be contaminated.
>>In Cincinnati where we live there is a balance disorder institute. Is
>there anything like that where you live? If anybody could help that type
>of place might be able to.
>
>
>>Try acupuncture. It is no miracle cure but it does calm the spirit and
>nerves when my celiac systems are at their worst (mainly neuropathic and
>stomach pain) without medications' side effects.
>

>Just a thought as I work with a Kinesiologist who treated a patient with
>Polymyositis.  He had Lymes disease!  Lymes disease is very hard to detect
>in a test and if you got it from a Horsefly instead of a tick the test may
>not show up.


>Has your Neurologist check for silent migranes?  I've had them.  All the
crap without any head pain . . . Just a thought.
>

>I had been working in an aerospace production job with lots of stress,
>when I started to get light headed and had what I called 'tunnel vision'
>where everything seemed to move too fast. It seemed to be comparable to
>the description you gave of  "the inside of your head taking a second to
>catch up with your eye & head movements".I started taking a lot of B
>vitamins and in a few months the problem went away. B vitamins are used
>up under stress and they affect your nerves which could affect your eyes,
>ears( inner ear balance) & possibly the brain. I have since learned that
>your B vitamins are produced in your body in the intestines. Since celiac
>damages the intestines & their ability to absorb nutrients, you could be
>deficient in B vitamins. I found that powdered vitamins or liquid
>sublingual (under the tongue) are more efficiently absorbed into the
>bloodstream until the intestines are healed. I have also learned about
>'probiotics' (for life) which are friendly bacteria that can be added to
>the intestines to replace the bacteria destroyed by doctor prescribed
>'antibiotics' (against life).  These probiotics (friendly bacteria) help
>the body to digest food, produce B vitamins & protect the intestines
>against the overgrowth of other unfriendly bacteria including Candida.
>>I learned that my adrenals were heading toward exhaustion, my immune
>system was down. It took many months to recover. Some of my best
>improvement came after I read up on Candida, leaky gut, antifungals etc.
>& took an intestinal antifungal called Nystatin.
>>I didn't get any help at all from traditional doctors at my HMO. They
>said all my symptoms were 'in my head'. I would be dead today if all I
>had was 'western medicine'.
>
>
>>>I would recommend a search in the archives.  I know that I had some
dizziness after I went (or thought I'd gone) GF.


>not sure about being relegated to celiac but my sister in law (not celiac)
>had many similar symptoms.  Only after did they do a CT scan of the Inner
>ear did they find Eosinophilia granuloma in both ears.  She had lost some
>hearing in one ear and had the vertigo and migraines, etc.


>>I would suggest you to go to this other exellent site:
>http://forums.delphiforums.com/celiac/messages
>THIS IS THE FIRST INSTALLMENT OF THE SUMMARY!!MORE TO COME.

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