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Subject:
From:
Chester M Worwa <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 11 Feb 1999 18:35:27 -0500
Content-Type:
TEXT/PLAIN
Parts/Attachments:
TEXT/PLAIN (44 lines)
Jill and everybody,

     I went to the neuro today and showed him what you wrote, Jill.  He
said that it is right, but a sling may do more damage than help.  He told
me to take a year to contemplate getting Bacflolin (sp) injections right
into the arm muscle itself.  I do not know what to do because he said that
he doesn't know how I will react to it and the though of getting a needle
in me every 3 months does not sound like fun and also I might be moving
to a different state after I graduate in about a year.  I just need
sugestions.


Chester Worwa



On Sun, 28 Jun 1998, Jill Jacobs wrote:

>  Chester,
>
> HA!  Doctors do NOT always know what they are talking about.  They know what
> they have learned in school, and they know what they have learned from
> experience dealing with patients.  However, I have found that a great many
> 'experts' have not assimiliated one damn smidgen of what they have
> experienced (working with patients) into their repertoire.
>
> *You* know what is best for you.  The doctors, therapists, etc that work
> with you should listen to what you say you are experiencing (whether it is
> pain, spasms, any sensation or feeling), share their insight, and *then*, as
> a *team* develop a plan to manage it.
>
> Jill A. Jacobs
>
>  ~~~~~~~~~~~~~~~~~~~~~~~~~~~
>  To sin by silence when they should protest makes cowards of men.   ~Abraham
> Lincoln
>
>  ~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> The hope of the world is still in dedicated minorities. The trailblazers in
> human, academic, scientific, and religious freedom have always been in the
> minority. ~Martin Luther King, Jr.
>  ~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>

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