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St. John's University Cerebral Palsy List
Date:
Wed, 3 Oct 2001 22:17:32 -0700
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Hi Joy,

My heart goes out to you.

When I was 18 (20 years ago) I began having near constant pain in my left
hip and leg. My pain was also the result of surgery. (In hind sight, I think
cp and surgery are a dangerous combination.)   Here's what was helpful to
me:

 - For several years I received shots of Cortisone (a steroidal
anti-inflammatory) directly into my hip. This provided substantial, though
temporary, relief. The effects of one well  placed shot lasted about 2
months. Eventually the Cortisone stopped helping, but it got me through for
awhile.

- In my mid-twenties I discovered Feldenkrais bodywork and this made a HUGE
difference in my hip (and the rest of me). Now I have manageable hip pain
2-4 days a month, instead of chronic severe pain. For more information on
Fldenkrais work, check out http://www.feldenkrais.com/.

- Having good support in my chair has also helped. Your chair should have a
firm seat and back, with good lumbar support.

I agree with others that a trip to a pain specialist could be helpful.

Wish you relief.
Pam


> Date:    Sun, 30 Sep 2001 23:51:25 -0400
> From:    - Joy - <[log in to unmask]>
> Subject: <No subject given>
>
> I know that you all are probably dealing with much more serious problems
> than mine, but I have to share anyway...
>
>   Most of you probably remember that I had a partial femorectomy last
April,
> and ran into lots of complications.  Since the operation, I've been
dealing
> with lots of chronic pain in my hip and leg.  I went to see the head
> orthopedist at Georgetown, and he said that this was normal for the
> operation.  But!!!  He also said that the pain would last for at least 18
> months after the operation, and that the operation was never performed on
> high functioning patients because of the pain factor.  The doctor that did
> the surgery never ever told us this.  I don't know what to do.  He
> recommended muscle relaxers, anti-inflammatories, and hydrotherapy.
>
> It's just not helping, and I'm miserable.  This pain is driving me crazy -
> I'm snappish, I'm hostile, and I can't focus on anything.  I know
logically
> that it will go away, but I don't know if I can stand it anymore.  I'm
> really afraid that I'm going to do something I'll regret.  I just don't
know
> where else to turn or what to do.
>
> ~Joy~
> http://diluted.org/joy
>
> ------------------------------
>
> End of C-PALSY Digest - 28 Sep 2001 to 30 Sep 2001 (#2001-262)
> **************************************************************

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