Here is more information about this.  A friend asked me to post it.

Spero

*** information below ****

SEEKING RESEARCH PARTICIPANTS WITH RETINITIS PIGMENTOSA

http://www.edinboro.edu/~bsiple/research.htm

My name is Barbara Siple and I need your assistance. I am a clinical
psychology doctoral student with Retinitis Pigmentosa (RP). My
dissertation research at Fielding Graduate Institute examines coping
responses and adjustment of adults with RP.  Much research has focused
on adjustment to congenital blindness or to sudden loss of vision.
However, little research has examined adjustment to the gradual vision
loss associated with RP.  This study is designed to expand the knowledge
base about individuals with low and declining vision.

If you are 18 years of age or older, and have been diagnosed with
primary RP, please visit my website or contact me to obtain a packet of
materials. Individuals with associated conditions such as Usher's,
Bardet-Biedl, or Senior-Loke syndromes, or Abe-Talipoproteinemia are not
eligible to participate because primary RP is the focus of this
particular research study.

 This study will take you less than 30 minutes. There are three
instruments to complete.  Participation is voluntary. Your anonymity is
guaranteed. Numeric codes will be used instead of names in order to
protect the identities of research participants.

There are potentially several benefits as a result of your participation
in this research study. First, by sharing your experiences related to
RP, you may feel personally satisfied to know that you will be
contributing to the relatively scant body of knowledge about RP. Second,
little is known about the impact of progressive vision loss. It is
anticipated that results of this study will enlarge the literature on
coping responses and adjustment to RP. Finally, on a practical level,
the results may help professionals in the field of visual impairment and
blindness to make appropriate interventions, recommendations, and
referrals for individuals with RP.

To participate in this research project, visit my website:
http://www.edinboro.edu/~bsiple/research.htm,

or contact me as follows:

Barbara A. Siple

c/o CAPS

Ghering Health and Wellness Center

Edinboro University of PA

Edinboro, PA 16444

E-mail:
[log in to unmask]

Telephone: (814) 732-2252 (EST)

Thank you in advance for your interest in my research project.


----- Original Message -----
From: "Judi Piscitello" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, April 28, 2003 11:54 AM
Subject: Research on RP


> Sorry that this is a little off the topic of technology, but Barbara
> Siple is doing research on Retinitis Pigmentosa, and I thought that
> folks with RP might like to help her with her research.  Her web site is
> http://www.edinboro.edu/~BSIPLE/research.htm.
>
>
> VICUG-L is the Visually Impaired Computer User Group List.
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>
>


VICUG-L is the Visually Impaired Computer User Group List.
To join or leave the list, send a message to
[log in to unmask]  In the body of the message, simply type
"subscribe vicug-l" or "unsubscribe vicug-l" without the quotations.
 VICUG-L is archived on the World Wide Web at
http://maelstrom.stjohns.edu/archives/vicug-l.html