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Sender:
"St. John's University Cerebral Palsy List" <[log in to unmask]>
Subject:
From:
Kathleen Salkin <[log in to unmask]>
Date:
Mon, 28 Jan 2002 15:07:36 -0500
Reply-To:
"St. John's University Cerebral Palsy List" <[log in to unmask]>
Parts/Attachments:
text/plain (49 lines)
Kathy Jo:

Sounds like your caretaker's sister's water broke and she's probably gone into labour.  So I'd cut her some slack on that, but the agency should have sent someone in her place.

I know it's hard to stand and walk but the more you move about the better off you'll be.  Can't your doctor prescribe some aids like braces to support your ankles and legs, or can you use a walker?

Sounds like you're between a rock and a hard place as far as the area you live in goes.  I can't believe you're the only disabled young person in your area.  Does your state have a central agency for helping disabled folks in its capital?  I live in North Carolina and the agencies are all centered in Raleigh, our capital.  I strongly suggest you write or call them to find out how they can help you.  And do it yourself.  By taking the responsibility and doing it yourself, you're empowering yourself and clearing the way to make your own decisions.  Use a search engine like google.com to find out the web pages for your state's agencies and go there.  You'll find loads of information, I'm sure.

OK Cornerstone may not be the best way to go, but surely there are other options, maybe not in your town but in your state.

        Kat





"St. John's University Cerebral Palsy List" <[log in to unmask]> wrote:
> I am getting more frustrated with Tracey.  No ,
she isn't history yet.  Tracey called in again
this morning.  Her sister is due to have her baby
anyday and Tracey is going to go in with her.
(She told us this before.) Her excuse today was
something about her sister's water.  Thanks for
your prayers.  My CP is getting worse.  When I
walk , I turn in my ankles.  So I have to do more
standing and walking.

My case manager doesn't think I will be safe
staying alone.  I don't have the money to hire
somebody 24 hours.  I liked Cornerstone , but
they have a waiting list.  I don't know if I
would like it permanently.  If I moved there
permanently , there is no turning back , then I
will be forced in to an institution.

No , there's no accessible public transportation
in my town, that I know of.  I'm the only person
with a disability in my town that I know of ,
that doesn't drive.  I live in the country of a
rural area.

=====
My Ya-Hoo ID:  kathyjopinkus

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