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"St. John's University Cerebral Palsy List" <[log in to unmask]>
Subject:
From:
Cindy Curtis <[log in to unmask]>
Date:
Wed, 14 Nov 2001 11:30:15 -0800
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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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I like you Betty, we have some of the same ideals.

Cindy
On Tue, 13 Nov 2001 07:20:36 -0500 "Barber, Kenneth L." <[log in to unmask]>
writes:
> -----Original Message-----
> From: Matt Conaway [mailto:[log in to unmask]]
> Sent: Thursday, November 08, 2001 4:32 PM
> To: [log in to unmask]
> Subject: Re: Drugs....
>
>
> And, why is it so wrong to be spastic in the first place?  What is
> this
> compulsion to mask or deny spasticity or any other manifestation of
> disability?  Are we bad people for accepting our conditions as they
> are?
> I'm very spastic.  YET, I SEE ABSOLUTELY NO REASON TO DO ANYTHING
> ABOUT
> IT.  It's troublesome at times, yes.  So what?  I ain't broke and
> won't be
> fixed.  I am created as I am.
>
> Matt, my left shoulder and back muscles are spastic, my right
> shoulder and
> back buscles are spastic. they spaszm in opposie directiona many
> times at
> the same time. what is wrong with that? it pulls your back apart.
> not
> exactly painless. i could go to other parts of the body and give you
> more,
> but, this should suffice.
>
> I think many parents of disabled kids and other able-bodied people
> are
> mortally afraid of disability. Therefore, all kinds of manipulations
> and
> black magic are cast over us so that we might be re-made into
> pseudo
> able-bodied people. I've seen too many parents who think they know
> everything.  Talk about murder and mayhem of the spirit.  Yet, I
> merely
> dismiss them with pity like I do other over-educated ignorants.
>
> nope can't be re-made. anyone who tries is in for dissappointment
> and maybe
> more pain than they would have had.
>
> ...And, there's plenty more where that came from, too!
>
> ditto
>
> "The revolution will NOT be televised!"
>
>
> Matt
>
> On Thu, 8 Nov 2001, jd wrote:
>
> > Ok I my be missing the boat here but why are you going
> > to the doctors for spasticity if you aren't willing to
> > do anything about it. The doc is going to offer you
> > drugs,surgery or therapy( maybe all three) to deal
> > with the spasticty? If you know you're not going to
> > consider any of them, which is your right, why waste
> > the time and money on the doctor to start out with?
> > Joanne
> > --- Cindy Mallory <[log in to unmask]> wrote:
> > > In a message dated 11/6/01 11:40:18 PM Eastern
> > > Standard Time,
> > > [log in to unmask] writes:
> > >
> > > << I can tell you guys that Drugs Are It at U-M
> > > Hospital.  When I moved to
> > >  Michigan, the first thing these people wanted to do
> > > is shove baclofen down
> > >  my throat because they wanted to "control" my
> > > spasticity.  God forbid we
> > >  should be the least bit spastic.  Das ist verboten,
> > > ja!  It's as if
> > >  spasticity is an evil, bad thing.
> > >   >>
> > > My 10 yo son gets the same treatment and he is very
> > > mild spastic, but I
> > > refuse all meds. He's not in pain so why try to
> > > correct something that isn't
> > > a problem.
> > >
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Find a job, post your resume.
> > http://careers.yahoo.com
> >
>

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