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Sender: "St. John's University Cerebral Palsy List" <[log in to unmask]>
From: Matt Conaway <[log in to unmask]>
Date: Thu, 8 Nov 2001 16:31:36 -0500
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Reply-To: "St. John's University Cerebral Palsy List" <[log in to unmask]>
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And, why is it so wrong to be spastic in the first place?  What is this
compulsion to mask or deny spasticity or any other manifestation of
disability?  Are we bad people for accepting our conditions as they are?
I'm very spastic.  YET, I SEE ABSOLUTELY NO REASON TO DO ANYTHING ABOUT
IT.  It's troublesome at times, yes.  So what?  I ain't broke and won't be
fixed.  I am created as I am.

I think many parents of disabled kids and other able-bodied people are
mortally afraid of disability. Therefore, all kinds of manipulations and
black magic are cast over us so that we might be re-made into pseudo
able-bodied people. I've seen too many parents who think they know
everything.  Talk about murder and mayhem of the spirit.  Yet, I merely
dismiss them with pity like I do other over-educated ignorants.

...And, there's plenty more where that came from, too!

"The revolution will NOT be televised!"


Matt

On Thu, 8 Nov 2001, jd wrote:

> Ok I my be missing the boat here but why are you going
> to the doctors for spasticity if you aren't willing to
> do anything about it. The doc is going to offer you
> drugs,surgery or therapy( maybe all three) to deal
> with the spasticty? If you know you're not going to
> consider any of them, which is your right, why waste
> the time and money on the doctor to start out with?
> Joanne
> --- Cindy Mallory <[log in to unmask]> wrote:
> > In a message dated 11/6/01 11:40:18 PM Eastern
> > Standard Time,
> > [log in to unmask] writes:
> >
> > << I can tell you guys that Drugs Are It at U-M
> > Hospital.  When I moved to
> >  Michigan, the first thing these people wanted to do
> > is shove baclofen down
> >  my throat because they wanted to "control" my
> > spasticity.  God forbid we
> >  should be the least bit spastic.  Das ist verboten,
> > ja!  It's as if
> >  spasticity is an evil, bad thing.
> >   >>
> > My 10 yo son gets the same treatment and he is very
> > mild spastic, but I
> > refuse all meds. He's not in pain so why try to
> > correct something that isn't
> > a problem.
> >
>
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