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Reply To: | St. John's University Cerebral Palsy List |
Date: | Thu, 21 Feb 2002 18:05:14 EST |
Content-Type: | text/plain |
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Hi Everyone,
Just a note to say I will not be having intrathecal baclofen pump surgery.
The team felt it did not help with regards to my pain. What hurts me
though, was that they caused me pain-- the doctor doing the injections
kept hitting my nerves, had a huge headache, and I could not differentiate
between the various and sundry pains. They also said they got the same
results as January 25th, but would not recommend surgery. I am very
confused, especially because I kept writing on my pain sheets that I could
not differentiate between pain, it was not my normal pain, etc. I don't
think they should have made jidgements when they were INCREASING MY PAIN
JUST BY INJECTIONS... IN BOTH THE PLACEBO AND THE REAL INJECTION HE HIT A
NERVE. I don't know if I should try for another doctor, go through the
testing again, etc.
Surprisingly, I am not disappointed though... Have not even cried...
What does everyone think?
Jenn
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