what about trying Sinemet, medicine for Dystonia and Parkinson-disease'? It
worked for me untill the stimulator. Asdis.

At 16:54 9.2.2002 -0500, you wrote:
>Hi Everyone,
>
>First, my apologies to anyone who gets two of these because they bellong
>to more than one Internet support group, but I need to vent.
>
>I am still at home for medical testing. Yesterday, (February 8th), I went
>for an E.M.G. (The one which Dr. Strong (neurologist), had initially said
>he did NOT order). He really DID order the test. I get into the
>examination room, and the technician says that the requisition states that
>the physician ordered an EMG study of my right hand and arm. I WAS
>SHOCKED. THIS IS MY LEAST AFFECTED BODY PART. I snt the technologist to
>find Dr. Strong, and it turns out that he wants an EMG study of my legs--
>makes much more sense to me. The test was a needle study, so somewhat
>painful, but I got through it alright. No specific nerve damage anywhere,
>although there are some muscles in my legs which I will never be able to
>strengthen, because they have very little innervation...
>
>Now on to my second need for venting. I had telephoned Dr. Strong's office
>on Tuesday regarding oral medications I might take for dystonia. All of
>the movement keeps me awake at night, disturbs my sitting balance, etc.
>Yesterday, I ran into the nurse, and she said she would get him to
>prescribe me something, asked the phone number of our regular pharmacy,
>etc. I got a phone call from the nurse around 7 last night saying that Dr.
>Strong could not find the notes mentioning these meds, that his secretary
>still had to do a lot of filing, and that it might take a WEEK for them to
>call anything into the pharmacy. I am in pain and cannot wait a week!!!!
>So instead of freaking, I did the most humane thing and looked up
>medications for dystonia on the Internet and left a message for the nurse
>with the names that I thought were mentioned. I hope they will do
>something for me soon. I am sleeping 12-16 hours a day, just because I
>must take so much medication I HAVE NO LIFE. They will not tell me when
>they will do the surgery for  Intrathecal Baclofen pump placement, just
>that I will be called a week to a month ahead, and that it will PROBABLY
>BE IN MAY I am going nuts, just want someone to listen to me, want to be a
>student instead of living in my bed. I want to cry as I  write this.
>Sorry, but I needed to vent. Please say some prayers for me.
>
>Jenn
>(who wishes she could get new physicians but cannot thanks to the slow
>Canadian system).

Asdis Jenna Astradsdottir.
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Iceland.
:
Faith, Hope and Love.