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Subject:
From:
Kathy Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 31 Jan 2002 07:13:13 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (70 lines)
jen, why are you going to the hospital?





--- Jennifer Zubko <[log in to unmask]>
wrote:
> Hello Everyone,
>
> Just a note to say thank you for listeningto
> me, and for your unending
> support. Ipersonally think I should have the
> right to contact any doctor
> who is caring for me whenever I need to, if it
> is to ask a question,
> clarify something, or just tell them how Iam
> feeling. I AM SO GLAD THAT
> DR. DELANEY (my physiatrist since the age of
> 16), lets me do this. My Mom
> came home from work today with a note (e-mail
> if we want to get
> technical), stating that ALL of the strengths
> of Intrathecal Baclofen
> would be covered by insurance... And that all I
> need to get the portions
> of my manual/power chairs not covered by the
> government covered by the
> insurance company is a letter from a physician
> saying that they are
> medically necessary, and that I have outgrown
> my other chairs... Which I
> CAN SAY IS THE HONEST TRUTH. So i AM REALLY
> HAPPY THAT THERE WILL NOT BE A
> STRUGGLE OVER FUNDING ISSUES. I HAVE NOT
> E-MAILED THE NEUROLOGIST ABOUT
> ALL THIS, AS I AM AFRAID TO BE KILLED.
> Ironically, they want me to go back
> to the hospital tomorrow afternoon to make
> another post-Intrathecal
> Baclofen video. So I am still required to play
> their game, even though
> they won't really help me. I have had to take
> almost twice my regular dose
> of morphine just to keep the pain under
> control. THIS IS ALLOWED BY
> PHYSICIANS ORDERS, JUST DON'T LIKE TO DO IT
> BECAUSE IT MAKES ME SLEEP SO
> MUCH.
>
> Thank you for your prrayers, and please
> continue to pray-- even though I
> should not feel this way, I feel as if this is
> all my fault. I want so
> much to just have relief from pain.
>
> Thank you for all your help.It means more to me
> than words could ever say.
>
> Jenn


=====
My Ya-Hoo ID:  kathyjopinkus

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