Gosh I'm sorry I got it wrong.  Can your doctor talk to the neuro and get
the ball  rolling?  Does your school have a student health centre where
there would be a doctor you could talk to about the treatment so  you could
continue your studies?

    Kat

----- Original Message -----
From: "Jennifer Zubko" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, January 29, 2002 10:43 PM
Subject: Reply to Kat-- ITB, Pain, etc'


> Hi, Kat,
>
>
>
> It was the neurologist, and not the neurosurgeon, who sent the e-mail back
> to me saying not to bother him, that if all of his patients e-mailed him
> as much as I DID, HE WOULD NEVER GET ANY WORK DONE, AND THAT HE WAS NOT
> GOING TO HARASS DR. PARRENT (the neurosurgeon), regarding my date and time
> of pump placement. They have not even given me a date or time yet. From my
> point of view, I AM JUST TRYING TO GET INFORMATION ANY PATIENT WOULD WANT
> IF THEY ARE BOOKING SURGERY. I don't mean to bother this physician, but
> have not written back because I DON'T REALLY WANT MY HEAD BITTEN OFF. And
> I can't get a new neurologist because he is the one to deal with the
> intrathecal pump program. All I need to do is to be seen as trouble and
> for them to deny me a pump. No one seems to see that I am human and would
> not be begging shamelessly if the trial had not helped so much with
> regards to my pain. It just seems like nothing can go my way-- not Botox,
> the rhizotomy I had so much hope for that only half-worked. I am just so
> tired, and no one sees that. I AM NEAR MY BREAKING POINT, BUT NEED HELP
> WITH PAIN AND PUMP IMPLANTATION, NOTHING ELSE. ALL  I need is to be sent
> to a psychiatrist... Can't I just meet one doctor who sees what my needs
> are and does what needs to be done, no questions and no stipulations. I
> just want my life back, an scared I won't complete this term at school
> because of the pain (which the Intrathecal Trial took away). I don't know
> who to go to, or who to depend on...
> Jenn