C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Salkin Kathleen <[log in to unmask]>
Reply To:
Salkin Kathleen <[log in to unmask]>
Date:
Tue, 29 Jan 2002 13:39:42 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (174 lines)
OK I think Anthony's point about getting on the waiting list and trying it
for a few months is a better one than what I was saying (or trying to).

I quote: " I don't know if I would like it permanently.  If I moved there
permanently , there is no turning back , then I will be forced in to an
institution."  So that's why I said Cornerstone might not be the best
option.  However, if you do it as a trial basis and not a permanent one,
you're not stuck there.  Unless they make you sign a contract to the
contrary?  In that case, no, don't go there.  However, I cannot imagine you
would be so tied down you couldn't leave.

I said, "OK Cornerstone may not be the best way to go, but surely there are
other options, maybe not in your town but in your state."

You need to be talking to your case worker about all of this.  I certainly
would hope she'd be doing her best to work with you and your preferences.
If not ask for another case worker to be assigned to you.  A good case
worker would be working with you, not against you, and she would be helping
you do research on this stuff.

And as Mag and I have said, if your area or town is so poor in resources for
the disabled, maybe you should be considering moving elsewhere in the state,
nearer a larger city.

        Kat





----- Original Message -----
From: "Kathy Pink" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, January 29, 2002 1:21 PM
Subject: Re: More Woes


> Cornerstone's waiting List is about a year.
> Kathy
>
>
>
>
>
> --- Anthony Arnold <[log in to unmask]>
> wrote:
> > I would have to agree with everything Kat has
> > said here.  About braces and
> > walkers, they're getting easier to get because
> > of greater demand for them
> > now days, I know a man who recently needed an
> > AFO and he had access to one
> > within a day.  About Cornerstone, if I were
> > you, I would definitely put my
> > name down on their waiting list and when
> > there's room, I would try it for at
> > least 3-6 months.  If you don't like it, you
> > can always move to another
> > place, but I wouldn't move back into your
> > parent's because that wouldn't
> > solve anything.
> >
> > Thanks,
> > Anthony
> >   ----- Original Message -----
> >   From: Kathleen Salkin
> >   To: [log in to unmask]
> >   Sent: Monday, January 28, 2002 2:07 PM
> >   Subject: Re: More Woes
> >
> >
> >   Kathy Jo:
> >
> >   Sounds like your caretaker's sister's water
> > broke and she's probably gone
> > into labour.  So I'd cut her some slack on
> > that, but the agency should have
> > sent someone in her place.
> >
> >   I know it's hard to stand and walk but the
> > more you move about the better
> > off you'll be.  Can't your doctor prescribe
> > some aids like braces to support
> > your ankles and legs, or can you use a walker?
> >
> >   Sounds like you're between a rock and a hard
> > place as far as the area you
> > live in goes.  I can't believe you're the only
> > disabled young person in your
> > area.  Does your state have a central agency
> > for helping disabled folks in
> > its capital?  I live in North Carolina and the
> > agencies are all centered in
> > Raleigh, our capital.  I strongly suggest you
> > write or call them to find out
> > how they can help you.  And do it yourself.  By
> > taking the responsibility
> > and doing it yourself, you're empowering
> > yourself and clearing the way to
> > make your own decisions.  Use a search engine
> > like google.com to find out
> > the web pages for your state's agencies and go
> > there.  You'll find loads of
> > information, I'm sure.
> >
> >   OK Cornerstone may not be the best way to go,
> > but surely there are other
> > options, maybe not in your town but in your
> > state.
> >
> >           Kat
> >
> >
> >
> >
> >
> >   "St. John's University Cerebral Palsy List"
> > <[log in to unmask]> wrote:
> >   > I am getting more frustrated with Tracey.
> > No ,
> >   she isn't history yet.  Tracey called in
> > again
> >   this morning.  Her sister is due to have her
> > baby
> >   anyday and Tracey is going to go in with her.
> >   (She told us this before.) Her excuse today
> > was
> >   something about her sister's water.  Thanks
> > for
> >   your prayers.  My CP is getting worse.  When
> > I
> >   walk , I turn in my ankles.  So I have to do
> > more
> >   standing and walking.
> >
> >   My case manager doesn't think I will be safe
> >   staying alone.  I don't have the money to
> > hire
> >   somebody 24 hours.  I liked Cornerstone , but
> >   they have a waiting list.  I don't know if I
> >   would like it permanently.  If I moved there
> >   permanently , there is no turning back , then
> > I
> >   will be forced in to an institution.
> >
> >   No , there's no accessible public
> > transportation
> >   in my town, that I know of.  I'm the only
> > person
> >   with a disability in my town that I know of ,
> >   that doesn't drive.  I live in the country of
> > a
> >   rural area.
> >
> >   =====
> >   My Ya-Hoo ID:  kathyjopinkus
> >
> >
> >
> __________________________________________________
> >   Do You Yahoo!?
> >   Great stuff seeking new owners in Yahoo!
> > Auctions!
> >   http://auctions.yahoo.com
>
>
> =====
> My Ya-Hoo ID:  kathyjopinkus
>
> __________________________________________________
> Do You Yahoo!?
> Great stuff seeking new owners in Yahoo! Auctions!
> http://auctions.yahoo.com

ATOM RSS1 RSS2