my daughter is both gluten and wheat intolerant but not celiac!! she was
diagnosed with EG at 8, and these are just 2 of a long list of foods which
she is intolerant to but test show she is not allergic to them - life would
be somewhat easier when it comes to to getting foods on prescription

Susan in UK
----- Original Message -----
From: <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, March 27, 2005 5:03 AM
Subject: intolerance vs allergy


> Steve,
> You posted:
>     "Casein intolerance is a misnomer. You can have lactose intolerance or
> milk
> protein allergy - to casein or whey or to both - but you shouldn't use the
> term
> casein intolerance. I understand the confusion, and it's made worse by
people
> who use the equally inaccurate and outdated term gluten intolerance, but
> allergies are not intolerances."
> ************************
>     I just wanted to let you know that there are those of us out here who
> don't fit the norm.  I disagree with your statement because I am "casein
> intolerant," but not "allergic" to milk.  I have no IgE mediated allergies
to any
> milk, but I do have IgG mediated delayed reactions to casein. Therefore,
I'm
> casein intolerant.
>      I also have "severe gluten intolerance."  I'm not "celiac."  There is
a
> difference. Most people don't know this. This is not outdated.  It's
actually
> more in keeping with current reasearch on celiac disease and gluten
> intolerance. The genes that you have predispose you to one or the other.
>      I have all the symptoms, illness, food sensitivities of celiac, but I
> don't have it. A place to find information on gluten is www.enterolab.com.
In
> my case, the gluten is the initial reason that the food sensitivities
began
> from other foods, such as casein, as the gut/ immune system got messed up
from
> the gluten.
>     I do agree that allergies are not intolerances.  It's my understanding
> that allergies are IgE mediated immediate responses to something.
Intolerances
> are other than this.
>     I actually figured out the milk problem first, which then led to the
> gluten as the actual culprit.  Just thought I'd share the fact that some
of us are
> out here who don't fit the norms!
> JL
>
>