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Subject:
From:
Elaine Coloura <[log in to unmask]>
Reply To:
Milk/Casein/Lactose-Free List <[log in to unmask]>
Date:
Fri, 19 Jul 2002 21:15:56 EDT
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We have used Alimentum. It worked for a few months. Then we went to Neocate
which can only be purchased through a pharmacy with a doctors prescription.
Then there is Neocate plus 1 for older children. Hope this helps. My son has
a Secretory IGA deficiency, Glycogen Storage Disease Type six, Eosoniphil
Gasteroneteritis (spelling??), and Asthma. He was basically allergic to
EVERYTHING literally. He was on liquid diet until he was 2 plus years old.
Had a feeding tube as well.

Hope this helps. Neocate is very expensive and some insurance companies will
pay for it for medical necessity.  A letter has to be written by your doctor
explaining the reason to the company.



Elaine

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