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Since diagnosis (7/01), things have gone downhill
Every time i go out, restaurant card or no restaurant card, i get sick
I am CONTSTANTLY consuming gluten, usually i can figure out what had it,
but not always, like recently i think i've isolated a contamination
source as a wooden cutting board, no idea if i can save the expensive
wooden board, but i just hope to not get contaminated so much.
It never occurred to me to question inhalers and shots. Until i read an
oral care summary. Do i need to question inhalers and shots?
And then again, since diagnosis i have developed something that
resembles asthma. I remember reading or hearing someone say that other
allergies would go haywire 'for a while'. Is this true? How long is a
while? With the exception of a recent (1999?) case of Bronchitis i
have NEVER spent so much time unable to breathe. I've never used up an
inhaler the day i was legally allowed to buy another one. I've never
had to use an inhaler regularly, just to be able to breathe. I have
never felt this much pain and stress in my life. I feel like i'm having
a heart attack, from the lung pain, and the shotgun sneezing that
accompanies it means it MUST be an allergy. (i think) I can no longer
stand having my cat or dog put his head on my chest. I feel like i'm
dying. My doctor, about a month ago, felt it would end quickly, and
wrote me another prescription, so i'm taking now, Allegra, albuterol,
and beconase DAILY and we can't stop this from happening to me.
I work 10 hour days and don't accomplish what i need to, and if i try to
call all the manufacturers in the world, i won't ever finish even what i
need to to keep my job. Plus i have school, which requires a 10-20 hr
commitment a week.
so
1) is this normal? has it happened to ANYBODY ELSE, and if so, what did
you do. Do i start looking for other food allergies? What i know is
the symptoms are worse in my bedroom (which hasn't been spring cleaned
in about 3 years, and which is on a high priority to be spring cleaned
when school ends this semester) But that's still two weeks off.
2) is there a service to which i can subscribe for some reasonable
amount of money that will help me manage the celiac disease. Is there a
need for such a service, if it existed, would you use it? What would it
entail if it did exist? A call in service that contacted manufacturers
about foods and drugs. Information? a book like the one that 'family
pharmacy' in the midwest puts out that is updated each year? I'm sorry,
my brain is full of mucus and i can't think what their name is.
Miki Tracey
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