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St. John's University Cerebral Palsy List
Date:
Sun, 17 Mar 2002 21:38:58 -0800
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Susan,
Maybe I can help. I'm also a parent and learn a lot
here from this group. There three other email groups
that  I belong to that might interest you as well.
The first is  CP Parent for parents of kids with CP.
Your questions will receive answers there from those
who are familiar with the CP pediatric
specialists/issues. The second group is Our-Kids for
parents of kids with any type of disability and the
third is for Preemie_child which deals with preemies
and their issues after the age of 4 and as they start
facing school issues.

To answer your questions to the best of my ability. My
son who has mod spastic quad CP is treated by a
physiatrist( a doc who specials in muscular/neuro
movement disorders and can be found in the Physical
medicine and rehab dept of a large hospital)If the
right side seems shorter she may have a contracture
which needs to be address. Is she going through a
growth spurt?
Joanne
 Here is joining instructions for the above lists

Preemie-Child:
http://www.prematurity.org/preemie-child/index.html


OUR-KIDS
A support group for parents of children with physical
and/or mental disabilities and delays. Heavy traffic.
Archives.
Instructions: In the body of your email, send the
message, SUBSCRIBE OUR-KIDS Your Real Name to
[log in to unmask] or join via the
website.
Listowner: Randy Ryan [log in to unmask]


CPPARENT
Listserv for parents who have a child with Cerebral
Palsy. Archives.
Instructions: Send the message, SUBSCRIBE CPPARENT
Your Name to [log in to unmask] or join
online.
Listowner: Paul Sheridan
[log in to unmask]


--- Susan Wade <[log in to unmask]> wrote:
> Hi Everyone!
> I am sorry for never introducing myself before but I
> wasn't quite sure I was
> even in a group who would have any answers for me.
> My daughter was born when
> I was only 25 weeks pregnant.  She and her twin
> sister both weighed 1 lb and
> 13 oz.  She had a grade IV IVH.  It affected her
> right side and I have been
> doing physical therapy with her since the day she
> came home from the
> hospital.  My question is this.....recently I
> noticed that her right leg(the
> side affected) is shorter than the left. Her foot
> also seems smaller.  Is
> this due to CP or not?  I am not sure about the
> details of CP but I do read a
> lot and haven't found any anwers to my questions.
> Who do I need to take her
> to see? An orthopedic specialized in pediatrics?
> (she will be 3 in August).
> Any help would be greatly appreciated!
> Susan


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