Oh I agree, you definitely need another opinion.  I guess I don't understand
why there's such a confusion over whether you have dystonia or not.  And as
a layperson and a CP, I fail to understand what sort of difference it would
make, except perhaps as to the root cause of the spasms.  To me, spasms are
spasms, and are painful, no matter what name one gives the condition.

Does anyone know if the baclofen pump is indicated in treating the symptoms
of dystonia as it is in CP?

I also admit, Jenn, that your experience is giving me second thoughts about
going through the procedures  myself.

Kat
----- Original Message -----
From: "Jennifer Zubko" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, March 17, 2002 11:17 AM
Subject: Kat- continued


> Dear Kat,
>
> I think I might feel better about the second trial if:
> 1. HE DID NOT KEEP HITTIONG MY NERVES, CAUSING ME MORE PAIN.
>
> 2. I wsould have been smart enough not to listen to them and take my
> medication
> 3. If they did the testing for the disorder they were trying to treat-- if
> it is dystonia, must be done with external pump and about 6 times the
amount
> of baclofen. I still don't even know if I really have dystonia-- they did
> not say a word to me-- so I need to go to another doctor about that. This
is
> not something I think Dr. Albright can prove/disprove on a five minute
> video-- specific tests must be done to determine the different types, etc.
> But if I have to stay on narcotics, I want s pump of some kind-- the side
> effects are crazy.
> Jenn