Alright, I'll admit it.  I sent him to the list.  I've actually met Tombo (I
hope you don't mind me telling a little of the story).  We met at the local
Children's Medical Services where I was leaving some brochures about our
program.  We're hoping to provide some services with our program but, we
don't have docs in our program.
We have lots of great underfunded programs in Florida and part of the
problem is getting help for our pediatric population.  The nearest big
children's center's are at least 1 1/2 hr. away for Tombo.  With other
centers being 3-6 hours away and then parents sometimes have to wait on
"clinic" days depending on the funding source.

We're working on it really <grin>

Thanks Joanne for the sign-ups for the parent lists.  This is one of the few
lists I had memorized at the time.  I knew someone would help out with
those.

Beth T. the OT

-----Original Message-----
From: St. John's University Cerebral Palsy List





Hi Tombo,
If you are in Florida, you might what to check out
what services they have for your son through Beth, our
resident OT on this list. I would also very highly
remommend you find your son an physiatrist, which is a
doctor that specializes in movement disorders such as
CP, Spinal cord,spinia bifida,etc.They really take the
whole child into account and not bits and pieces as
many specialists do. I have a soon to be 7 year old
who has spastic quad CP as well as other disabilites
and is considered severely multiply impaired by the
school district. Saying that more to let you know not
to let labels scare you because going by Alex's dx's
and labels you would never expect to find a kid who
has been invited to sing( solo) the National Anthem at
his brothers HS hockey game as well as lead his school
assembly in it,a kid in the regular first grade doing
regular 1st grade work with modifications. Does your
son have an IEP in place for school? You need those
labels to get school services( including for the
emotional part)
Here are two other list serves that are for parents
with kids with disabilites. Our-kids is for parents of
kids with any type of disability and my favorite of
kids disability lists for information and support.
CP Parent is for  kids with CP. C-Palsy isn't too much
for for kids per se but can be a wonderful peak into
the future for problems that present themselves as
adulthood is approached and reached. Mostly it's about
minds with weird sense of humors ( hey he should be
warned:)) and good old friendship and support.


OUR-KIDS
A support group for parents of children with physical
and/or mental disabilities and delays. Heavy traffic.
Archives.
Instructions: In the body of your email, send the
message, SUBSCRIBE OUR-KIDS Your Real Name to
[log in to unmask] or join via the
website.
Listowner: Randy Ryan [log in to unmask]


CPPARENT
Listserv for parents who have a child with Cerebral
Palsy. Archives.
Instructions: Send the message, SUBSCRIBE CPPARENT
Your Name to [log in to unmask] or join
online.
Listowner: Paul Sheridan
[log in to unmask]

Joanne