Hi Kathleen,

  What a great idea.

  Setting up a form we can fill out, listing all the points, and perhaps a
space for "additional comments" would be helpful. Registering such a site
with the big search engines might be helpful as well. All we need do is
approach Yahoo etc and explain what we're doing and get a better ranking. We
could also approach various cp-related newsgroups to invite them to
participate in the process, doing it in such a way so that it's not
perceived as spam.

  I guess the first order of business would be to organize the
questions/comments. So ... each of us should submit those points we feel
important for inclusion and we weed out duplications.

  What say you all?

Cheers!

Carla

----- Original Message -----
From: Salkin Kathleen <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 08, 2001 10:31 AM
Subject: Re: Personal Profiles - CP and Aging


> I can help with these, too.  If you don't want to put these profiles on
your
> website, Carla, I could set one up just for this purpose.  What do you
> think?
>
>     Kathy S.
> ----- Original Message -----
> From: "Carla MacInnis" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Friday, December 07, 2001 7:29 PM
> Subject: Personal Profiles - CP and Aging
>
>
> > Perhaps you and Deri could work together
> >
> > I seriously think we should look at doing this as we'd be helping those
> who
> > come after us, or those who are in the early stages of what we oldsters
> are
> > experiencing now. I've followed the threads on falling and I can say
that
> > I've sustained only one serious falling injury, and that had nothing to
do
> > with cp - I can thank a black cat for my dislocated elbow back in 85.
> >
> > Drugging us is not the answer. We could focus on our exercise regimens,
> > diet, even alternative protocols (such as I've used with great result
for
> > years, while remaining, for the most part, "doctor drug" free) For those
> of
> > us who are on medications that directly relate to cp and aging
management,
> > we need to identify them and explain why we are taking them, and for how
> > long. Those sorts of things would be helpful.
> >
> > Also helpful would be lifestyle issues - our eating patterns, our
sleeping
> > patterns, recreation, social time, coping skills at work, etc. Even an
> > exploration of the psychological impact of our "dis"abling condition
would
> > be important.
> >
> > Cheers!
> >
> > Carla
> > http://www.brunnet.net/terrier
> >
> >
> > ----- Original Message -----
> > From: Bobby G. Greer, Ph. D. <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Friday, December 07, 2001 7:42 PM
> > Subject: Re: Aging with C.P.
> >
> >
> > > I am game and I volunteer as editor, if you so wish, but Deri could
> > probably
> > > put
> > >  it in a more presentable form.
> > >
> > > Bobby
> > > >What say you all?
> > > >
> > > >Cheers!
> > > >
> > > >Carla
> > > >http://www.brunnet.net/terrier