Yes, calcium caseinate is a no-no.  At least for my daughter...she is incredibly sensitive, though.  Some people can get by with some and others not.  Caseinate is a form of casein, and thus a milk protein, however. Sorry. Have you tried nutramigen? I know all of the Pediasure products and product line contain dairy.

Hope this helps.
Elizabeth Lingle  
  
----- Original Message -----
From: Valerie Maples
Sent: Wednesday, February 20, 2002 10:50 PM
To: [log in to unmask]
Subject: Calcium caseinate?
  
Hello all!

I am mostly a lurker/reader.  My 8 year old  adopted daughter, Nichole, has
severe CP and is tube fed.  Making her very long story as short as
possible, she was moved to Isomil at about 8 months of age (before we got
her, she came to me at 13 months, weighing 13#) after being unsuccessful at
nursing and losing even more ground on regular formula.  She had medically
and physically declined by developing nearly status seizures and EXTREMELY
high rigid muscle tone.  After a year on Isomil and non-dairy baby foods,
she was seizure free and her tone became less rigid, although she was left
with residual damage.

Unfortunately, the Isomil eventually lead to her developing encopresis and
a mega colon, meaning she was incessantly constipated.  Once she was off of
WIC, we switched to Next Step Soy to save money, but concentrating it for
enough calories got REALLY expensive.  Next we tried to research formulas
and eventually we had a feeding tube placed to counteract the bad taste of
most formulas.  Eventually we settled on Fibersource, a totally soy
formula.  Sadly, what we saw was a totally reversal over the course of the
next 18 months, and now she suffers from rampant diarrhea.  So, the search
for a new formula begins.

A dietitian offered to research it for us and wound up recommending
Jevity.  However, when I got a free case of it from her, I get it home and
it lists calcium caseinate as its fourth ingredient.  I am afraid to try
it, having had a previous dietitian warn us to avoid all items with
"hidden" dairy ingredients such as whey, and caseins.  My question is, is
this one of the no-nos?

Typically in the past few years when Nichole has had an accidental exposure
to dairy away form our care she spikes high fevers and throws up in
addition to diarrhea, so if this is a no-no, I would be very wary of trying it.

Thank you for your time and any other recommendations you have.  Oh, yeah,
even though the Isomil or Next Step Soy work, more or less, it cannot be
covered by her Mississippi Medicaid since it is a counter item, even if
prescribed as her tube feeding.

Help!
Valerie MaplesGet more from the Web.  FREE MSN Explorer download : http://explorer.msn.com