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Subject:
From:
Carla MacInnis <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Wed, 28 Mar 2001 12:07:44 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (58 lines)
Hi Rayna,

  Describe your pain. In detail. Neck? Shoulders? Forearms? Wrists? Ankles? Do you
experience rib cage pain or chest pain of any kind? I may have some suggestions to
help you

Cheers!

Carla
http://www.brunnet.net/terrier


Rayna Lamb wrote:

> 1st  If they can create all these whizz bang (and I DO mean bang)
> electronic gizmos that can make para muscles move etc, how come they
> can't design a painkiller that works and doesn't fry your brain or
> curdle your kidneys - I want that way more that the very dubious honor
> of being `more normal' (in SOOOOOOO much pain at the moment I have
> been crying all day :-()
>
> 2nd  These gadgets are clearly going to be prohibitively expensive,
> what about people on very low incomes.  Chris Reeves is far more well
> of than most PWD.
>
> 3rd  I've grown up around people who are mostly `normal' and a large
> part of these people were/are appallingly cruel, stupid, insensitive,
> bigoted and thoughtless.  The less I have in common with these people
> the happier I am.  Also my disability seems to bring out the
> best/worst in people depending on the people themselves.  That ALONE
> is worth most of what I have been through - it is an EXCELLENT
> b*llsh*t detector - I know that the few people I do have that care
> about me are there for life, if they can cope with the harsh realities
> of the CP and the world's reaction to me, they can cope with anything.
> (yes I know all this is illogical reasoning, but I'm in PAIN, and I'm
> only logical on alternate Tuesdays anyway!!)
>
> Rayna
>
> And yes, the money could be better spent on a more accessible
> enviroment.  Everybody benefits from that.  If the world did want to
> make things easier for us, that would be first priority.  Making us
> `normal' is a cosmetic thing to make it easier for them to cope with
> us.
>
> On Wed, Mar 28, 2001 at 07:32:52AM -0500, Robert Mauro wrote:
>     Did anyone see Scientific Frontiers last night (3/26) on PBS?  it had Chris
>     Reeve and all these bio implants to get muscles to move.  The show contained
>     nerve regeneration experiments& that Reeve commercial where he walks.
>
>     Do u think these bio implant muscle stimulators r a good idea?  Why?  Why
>     not?  Could the money be better spent on new wheelchairs, access housing?
>     Will these implants make ramps and elevators and new wheelchair design take a
>     back burner as we become "more normal"??  Any comments??
>
>     Bob Mauro - [log in to unmask]
>     --------------------------------------------------------------------------

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