Hi Barbara,

Welcome.  My name's Steve.  I'm recovering quad from spinal cord injury
and horizontal upper hemi mild semi spastic CP.

I just started Botox injections in two trapezoid clusters and one
mastoid two hopefully reduce a torticollis, lower muscle tone, and
improve range of motion.  The doctor said the serum takes three weeks to
spread through the muscles.  From there we will evaluate results and
decide whether to proceed with higher doses.

Generally Botox should work on your back muscles.   Be sure you find
doctors willing to listen to you.  You may want to pay more attention to
your spinal cord to see whether you're experiencing any nerve
compression.

Feel free to email me directly.  I live in Philadelphia, PA.

Good luck

Steve.


----- Original Message -----
From: "Barbara Clements" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, March 10, 2001 5:20 PM
Subject: I was wondering


> Hello,
>
> My name is Barbara. I have severe spastic Cerebral Palsy and I sit in
a
> wheelchair all day. I type with a head wand. About there years ago my
> back and side started pulling on the right side.  Every time we
mention
> it to a doctor, they kind of overlook it or give me some more
medication
> which I don't want. I am on Dantrium and Valium now.  These seem to
work
> the best as far as relaxing my limbs and not cause any other problems.
>
> I have tried Bacon which made me have accidents, and Zanaflex knocked
me
> out. I think these medicines have weakened my bladder.  I have tried a
> chiropractor which gave me some relief, but now Medicare is refusing
to
> pay for that.  They are saying it's maintenance, and they don't pay
for
> maintenance.
>
> Now my mom wants me to try Botox injections in my back and side.  Do
> doctors give Botox injections in your back?  Is it safe?  Also how
does
> one find a doctor who does not want to keep giving a person medication
> for everything.  I'm in St. Louis, so if someone is out there in St.
> Louis that has a good doctor or ideas, please email me and maybe we
can
> exchange phone numbers.  But anyone with ideas please answer.
>
> Barb
>