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Subject:
From:
Chester Worwa <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 7 Nov 2000 11:07:07 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (160 lines)
I don't do any of it and I feel, great 99.9% of the
time.  I think people are as old as they think they
are, nothing else.

--- Carla MacInnis <[log in to unmask]> wrote:
> Hi all you Pains in the Neck,
>
>   I want to invite you to participate in a little
> test. Nothing drastic. Just
> something I think will help those of you
> experiencing back, neck and shoulder
> pain. Aging with cerebral palsy is a real pain, but
> it doesn't have to be
> tremendously so if you have a plan.
>
>   Begin, ASAP, taking 500-700mg of Vit C daily. It's
> a natural
> anti-inflammatory. Reduce the inflammation and you
> concurrently reducing
> pain/spasming. Start taking extra calcium -
> 250-300mg daily.Maintaining bone
> density lessens risk of fractures. Introduce
> magnesium at 300-400mg daily (helps
> with fatigue, and acts as a natural sleep aid) You
> can take cal-mag in the
> morning (found in most drug stores), and a magnesium
> tablet at night. Magnesium
> also helps with heart problems (arrthymia, etc).
> With all of this, drink 6-8
> glasses of water daily. You need to lubricate those
> joints and tissues.
>
>   Do this for one full month, and get back to me
> with your findings, then I can
> report our findings on the cp link on my web site.
>
>   I've been doing this for years and feel great
> 99.9% of the time :)
>
> Cheers!
>
> Carla
>
> "Cleveland, Kyle E." wrote:
>
> > So what do we do, Ken?  I've been fighting this
> severe pain thing for five
> > years straight, been poked, prodded, scoped,
> stuck, MRI'd--you name it.  No
> > closer to day-to-day relief than when I started.
> I firmly believe the MDs
> > wish we (adults) would just all go away.
> >
> > -Kyle
> >
> > -----Original Message-----
> > From: Barber, Kenneth L. [mailto:[log in to unmask]]
> > Sent: Tuesday, November 07, 2000 1:06 PM
> > To: [log in to unmask]
> > Subject: Re: A Pain in the Neck
> >
> > in addition to scholiosis i have a spinal
> sternosis (degeneration of the
> > spine) 2 herniated disk at c3 and c7 in the neck.
> i had it pegged, but, docs
> > don't seem to have a clue after being told in
> plain english. i have
> > "unexplained" pain in my arms, sholders hands,
> they must have crap for
> > brains.
> >
> > -----Original Message-----
> > From: Cleveland, Kyle E.
> [mailto:[log in to unmask]]
> > Sent: Tuesday, November 07, 2000 1:08 PM
> > To: [log in to unmask]
> > Subject: Re: A Pain in the Neck
> >
> > Oh, shit, Steve.  I don't like this at all.
> >
> > -Kyle
> >
> > -----Original Message-----
> > From: I. S. Margolis
> [mailto:[log in to unmask]]
> > Sent: Tuesday, November 07, 2000 12:35 PM
> > To: [log in to unmask]
> > Subject: A Pain in the Neck
> >
> > My friend "A" has Cerebral Palsy.  He is
> experiencing cervical and
> > spinal problems, as I have.
> >
> > In the Philly area I know many people with CP.
> Several are experiencing
> > comparable problems.  So far I am the only one of
> us to have incurred
> > severe paralysis of the arms and legs because my
> doctors and I failed to
> > understand that my spinal cord was being injured.
> >
> > Wonder if our CP aggravates spinal cord injury?
> Seems like an outbreak
> > here.
> >
> > My friendly alert.  Be aware!
> >
> > ISM
> > 'Stranger in a Strange Body"
> >
> > ----- Original Message -----(Much edited by ISM)
> >
> > Sent: Saturday, October 28, 2000 9:39 PM
> >
> > Subject: Medical Update
> >
> > > Hi:
> > >
> > >I  am on a new medication to control some of the
> disconfort and
> > tingling and pain I've been experiencing in my
> shoulders and arms.   The
> > medication (Ultram 50mg) does make me very tired
> (I am taking it only
> > once a day insread of up to three times as
> needed).   I'm thinking about
> > going to the phramacy to have the pills cut in
> half and take it twice a
> > day so i won't feel so tired.   IT does control
> the pain and tingling.
> > >
> > > It looks like I will have the cervical spine
> surgery ...I really have
> > no choice in the matter/    My doctor, and three
> other doctors too,
> > have said that if I don't get the surgery I will
> continue to weaken and
> > have falls more often.    And the more I have
> these initimate affairs
> > with the sifdrealks and in my apartment  I am
> putting myself at risk for
> > greater injury.  THe spine surgeon and the rehab
> doctor have both told
> > me independently that I could have a bad fall and
> risk becoming a
> > quadreplegic.   Soo... looks llike I'm in for  an
> "overhaul" of sorts,
> > Meanwhile. I'm still using a bone stimulator to
> heal my foot and the hip
> > surgery (remember that?)  has been put on the back
> burner while they
> > deal with my cervical spine.    I am scheduled to
> have a stress test the
> > day after the elections.   So...  I'll be at the
> polls!!!
> >
> > > Thanks,  again for listening.
> > >
> > >                                             A.

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