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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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From:
Cindy C Curtis <[log in to unmask]>
Date:
Wed, 28 Mar 2001 15:57:50 -0800
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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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I might be stepping on toes here, but why mess with what God has so
sovereignly created :)!

Cindy
On Wed, 28 Mar 2001 22:25:41 +0800 Rayna Lamb
<[log in to unmask]> writes:
> 1st  If they can create all these whizz bang (and I DO mean bang)
> electronic gizmos that can make para muscles move etc, how come
> they
> can't design a painkiller that works and doesn't fry your brain or
> curdle your kidneys - I want that way more that the very dubious
> honor
> of being `more normal' (in SOOOOOOO much pain at the moment I have
> been crying all day :-()
>
> 2nd  These gadgets are clearly going to be prohibitively expensive,
> what about people on very low incomes.  Chris Reeves is far more
> well
> of than most PWD.
>
> 3rd  I've grown up around people who are mostly `normal' and a
> large
> part of these people were/are appallingly cruel, stupid,
> insensitive,
> bigoted and thoughtless.  The less I have in common with these
> people
> the happier I am.  Also my disability seems to bring out the
> best/worst in people depending on the people themselves.  That
> ALONE
> is worth most of what I have been through - it is an EXCELLENT
> b*llsh*t detector - I know that the few people I do have that care
> about me are there for life, if they can cope with the harsh
> realities
> of the CP and the world's reaction to me, they can cope with
> anything.
> (yes I know all this is illogical reasoning, but I'm in PAIN, and
> I'm
> only logical on alternate Tuesdays anyway!!)
>
> Rayna
>
> And yes, the money could be better spent on a more accessible
> enviroment.  Everybody benefits from that.  If the world did want
> to
> make things easier for us, that would be first priority.  Making us
> `normal' is a cosmetic thing to make it easier for them to cope
> with
> us.
>
>
> On Wed, Mar 28, 2001 at 07:32:52AM -0500, Robert Mauro wrote:
>     Did anyone see Scientific Frontiers last night (3/26) on PBS?
> it had Chris
>     Reeve and all these bio implants to get muscles to move.  The
> show contained
>     nerve regeneration experiments& that Reeve commercial where he
> walks.
>
>     Do u think these bio implant muscle stimulators r a good idea?
> Why?  Why
>     not?  Could the money be better spent on new wheelchairs, access
> housing?
>     Will these implants make ramps and elevators and new wheelchair
> design take a
>     back burner as we become "more normal"??  Any comments??
>
>     Bob Mauro - [log in to unmask]
>
>
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