Subject: | |
From: | |
Date: | Mon, 9 Oct 2000 17:16:58 -0500 |
Content-Type: | text/plain |
Parts/Attachments: |
|
|
<<Disclaimer: Verify this information before applying it to your situation.>>
This one broke my heart. Perhaps someone will have a way to be helpful.
[log in to unmask]
>They die. Another scenerio is, what about the people with permanent
>damage ,that if they have a good dr will put them on total
>parenteral nutrition instead of letting them die, like me.
>[log in to unmask]
> I looked into this matter about 6 months ago. I called at least 20
> nursing homes in the St. Louis area with a fictitious aunt with celiac
> disease who needs nursing home care. Only 2 had a clue what I was
> talking about and unfortunately, one of them could be named the Ritz-
> Carleton nursing home. Tres expensive. I then wrote CSA/USA and
> Celiac Disease Foundation in CA suggesting they might wish to explore
> this matter as I thought it would be of interest to many. I have
> searched and searched for Mr. Rottman's reply from CSA/USA, but I
> obviously threw it away as it was a bunch of gibberish. But at least
> he replied. Never heard from CDF in California. I was and still am
> discouraged. Any suggestions, anyone? Hopefully, we can get more
> publicity or I can start saving big time for the Cadillac of nursing
> homes in this area.
|
|
|