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Date: | Sat, 2 Jun 2001 11:11:42 -0500 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Greetings fellow celiacs.
My sincere gratitude to all of you who responded to my frustration and
confusion.
All 40+ folks (except 1) that wrote me back agreed that the biopsy would be
an unnecessary expense due to the fact that after being gf for 7 months I
should be healed quite nicely and I would get a false negative result from
the biopsy as well as the 8 tubes of blood they just took from me.
I'll start by saying that I did print out some of the items that some of you
forwarded to me, I highlighted areas and faxed to the dr. with a cover
letter expressing my concerns. I rec'd a call from him about 2 hours later
and we discussed what his plan was.
His reasoning for the biopsy was that he saw that I had 2 tests initially,
one came back positive and one negative: I had been gf for 3 weeks at the
time of the test-I don't know if that matters. He said he knew that I was gf
and that he just wanted to see where my intestines were in the healing
process and see if I had any tumors. Once we get a baseline, then he may
challenge my system. He didn't want to challenge me unnecessarily. He also
assured me that he has a few dozen celiac patients and speaks at the local
support groups, etc.
My reasoning for verifying the diagnosis was that through reading the emails
on this list I have noticed that anytime anyone says "I have healed myself
through alternative medicine practices..." i.e. accupuncture recently- the
responses are very cynical and full of questions regarding the validity of
the diagnosis. I happen to be a Reiki Master/Teacher and take my practice
very seriously and sacredly, I have helped folks conquer cancer, heart
problems, emotional problems, chronic pain, etc. I am quite positive that
if it is in my highest interest then I will overcome this issue through my
healing practice and when I finally write in to say "I'm healed!", I want
the proof to show that I was truly celiac and that it is possible to
overcome. I am willing to go back on the gluten, providing I can get a
medical leave from work-I can't drive and do gluten too-and deal with
people.
I hope this answers some of the common questions that I rec'd yesterday and
this morning.
Thank you so much for helping me to make an educated decision. Mary
Stephen Belleville, IL
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