Subject: | |
From: | |
Reply To: | St. John's University Cerebral Palsy List |
Date: | Wed, 24 May 2000 09:50:30 -0500 |
Content-Type: | text/plain |
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Deborah,
Forget the UCP PT, it seems this is about his/her authority and not
above the well-being of Zachary. Work around this PT or get him/her out of
the
picture.
Bobby
>OK, here I go, and boy am I mad.
>First a quick history. Back early this year Zachary's neurologist told me
>that I needed to do something about Zachary's toe walking. He said if he
>continued it will cause problems down the line. He also told me it was
>the first sign that he was starting to turn spastic due to his ACM 1.
>Well with that I went to his new PT at UCP, third since he started a year
>ago, and asked her what we should do to stop his toe walking. She was not
>concerned and in fact turned down my suggestion of AFO's, since his OT had
>also mentioned to me that they might be beneficial for him to have.
>Needless to say about two weeks after talking to the PT and getting no
>where, Zachary saw his pediatric intensifist for the first time. That one
>visit was all it took and him to write a RX for AFO's saying they won't
>help his flat feet, but they will get him off of his toes, and that was
>what we had to do. So with that RX I called an outside agency that comes
>to the home and does the casting there. A PT from that agency came out,
>looked at Zachary's feet and was shocked that he wasn't all ready in
>AFO's. She said at that point in time his feet had all ready started
>getting tight and if we would have waited much longer his heel cords would
>have shortened. Since then he was doing wonderfully with them, finally
>going up steps alternating feet and running without falling. His
>respiratory therapist even made a point about how well he was doing since
>he got them. Yesterday he went to an appointment with his ortho doctor,
>who seen him 7 months ago and remembered how he had walked before, and
>also stated he was doing wonderfully with them and when he out grows these
>AFO's to be sure and call him to get replacements.
>Would you know that his PT came to me today and said she totally refuses
>to service him with the AFO's on. She said that she knew she told me she
>was totally against them and "demanded" to know the name of the doctor who
>ordered them. After telling her that three different doctors told me the
>AFO's were a plus to Zachary, she took their names down like she was going
>to call them and see if I was telling the truth. HOW DARE SHE ! Sorry
>but I am boiling about this.
>Any suggestions on what to do here ? Any help would be greatly
>appreciated, Thanks.
>Deborah mom of 4
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