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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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From:
Rayna Lamb <[log in to unmask]>
Date:
Sat, 24 Feb 2001 17:23:45 +0800
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<[log in to unmask]>; from [log in to unmask] on Fri, Feb 23, 2001 at 10:04:49PM -0800
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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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Paige, I'm recovering, feeling alot better than I did a few days ago,
and my physical pain is easing off - slowly.  It has helped
tremendously having all of you to complain to, and that you have all
been so supportive.  I really needed something like this list a few
years ago.  Look after yourself, and I hope you feel better soon too.

Hugs
Rayna

On Fri, Feb 23, 2001 at 10:04:49PM -0800, Paige wrote:
    Rayna- how ya feeling now?  I need sleep- just got in from 2 nights away- not happy bout this... and I am now sick..... so I think I'll crawl to bed and stay til I feel better!  (Which may be never- right GS?)

    Hugs
    Paige



    On Fri, 23 February 2001, Rayna Lamb wrote:

    >
    > Paige
    > Thanks, and lots and lots of hugs to you too!!
    >
    > Rayna
    >
    >
    > On Wed, Feb 21, 2001 at 01:46:33PM -0800, Paige wrote:
    >     (((((((((((((Rayna)))))))))))))))
    >
    >     (((((((((((((Rayna)))))))))))))))
    >
    >     (((((((((((((Rayna)))))))))))))))
    >
    >     (((((((((((((Rayna)))))))))))))))
    >
    >     (((((((((((((Rayna)))))))))))))))
    >
    >     Now can I have some too?  I've had a doubly shitty week- and GS- my mind says F**K OFF but my mouth has duct tape over it in those situations.  Sometimes I've been known to just spit out- "You're rude."  and walk away.
    >
    >     See ya'll in a day or two.
    >     Paige
    >
    >
    >     On Wed, 21 February 2001, Rayna Lamb wrote:
    >
    >     >
    >     > On Wed, Feb 21, 2001 at 09:25:32AM -0500, Bobby Greer wrote:
    >     >     In a message dated 2/21/01 2:05:31 PM, [log in to unmask] writes:
    >     >
    >     >     << I've heard tell that Mr. Foote can be quite a cantankerous old fart, but to
    >     >     listen to his voice was to listen to his quintessential "Southern
    >     >     Gentleman".  >>
    >     >
    >     >     Shelby Foote can be abrupt. He lives in Memphis. I once called him after that
    >     >     series to obtain an autograph for someone. He asks. "Do I know you, Suh?" I
    >     >     say, "Well, no." "Then don't you evuh bother again, I only give autographs to
    >     >     friends!" amd hung up.
    >     >
    >     >                               ------
    >     >
    >     >     Hey, everyone, do you all (or should that be y'all?) realize that
    >     >     the above is the perfect catch-all reply to all those rude,
    >     >     stupid, offensive, intrusive, idiotic and generally inexcusable
    >     >     questions and comments we all get every day from complete
    >     >     strangers?  Only rewritten as follows:
    >     >
    >     >    (After rude, stupid, thoughtless comment/question from complete stranger)
    >     >
    >     >     `Do I know you Suh/Ma'am?
    >     >
    >     >     `Well no' (moronic stranger)
    >     >
    >     >     `Then don't you EVUH bother me again, I only explain
    >     >     myself/justify my existence to/put up with appallingly rude
    >     >     behaviour from/or educate people who I consider my friends, (or people
    >     >     who are prepared to pay me obscenely huge amounts of money for
    >     >     doing so)!'
    >     >
    >     >     (Exit moronic stranger stage left)
    >     >
    >     >    Many, many thanks, Bobby and Kyle for inspiring this idea, you are
    >     >    both true southern gentlemen!
    >     >
    >     >    BTW, in regards to the widely spread idea that we have to educate
    >     >    the able-bodied about us and our disabilities, how can we explain
    >     >    ourselves to people who obviously regard us as perpetual children,
    >     >    and who don't treat us with the most BASIC respect in the first
    >     >    place.  How can you educate someone who thinks you are mentally
    >     >    deficient in the first place??? It is an INSANE double bind,
    >     >    ignored  if we do, ignored if we don't.  I constantly have people
    >     >    stare at me blankly if I say
    >     >    anything, and my speech is clearer, has better diction, and a MUCH
    >     >    better vocabulary than most able bodied people I encounter - some
    >     >    people would say that the only speech impediment that I have is
    >     >    that I talk too much.  Having to constantly educate others about
    >     >    our lives, is EXHAUSTING!  I don't know about anyone else, but I am
    >     >    so tired of it.  And the worst thing, is that the whole `people
    >     >    just don't understand' excuse is told to children with
    >     >    disabilities.  That is an APPALLING burden to place on a child.  I
    >     >    have been `educating' people since I could talk, and I still wake
    >     >    up screaming from nightmares at least once a week, because of the
    >     >    way the world treats me.  I also don't understand most people, but
    >     >    I don't expect them to explain themseves to me, for me to treat
    >     >    them with respect.  The provision of the basic requirements
    >     >    that we all need to live our lives on the same footing as the able
    >     >    bodied world should never be contingent on us `educating' others.
    >     >    No one else has to.  RESPECT AND DIGNITY IS A RIGHT NOT A
    >     >    PRIVILEGE, we should never have to earn it.
    >     >
    >     >    Disabled people have been `educating' people for decades, if it
    >     >    hasn't sunk in now, it never will.
    >     >
    >     >    I'm so very tired, and all I want is someone to give me a big hug.
    >     >    And I don't want to have to `educate' anyone to get it.
    >     >
    >     >    Sorry for the above everyone, but I have had a sh** week, and it's
    >     >    only Thursday.
    >     >
    >     >    Rayna
    >
    >
    >
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