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St. John's University Cerebral Palsy List
Date:
Tue, 30 May 2000 09:55:43 -0500
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Welcome to the list!

Yes , you might have to shave Breanne as she gets older.


Kathy Pink
AOL Instant Messenger ScreenName KJPink
ICQ UIN # 16632777
http://homepages.msn.com/WindowsWay/kjpink/
SafetyEd International's WebSite:  http://www.safetyed.org




----- Original Message -----
From: Nancy C. Butala <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, May 29, 2000 5:23 PM
Subject: NEWCOMER


> Hi!  I am a newcomer to this list.  I live in Michigan and have
10-year-old
> twin girls (born at 26 weeks), both with disabilities.  For some
background,
> Ashley (twin A) was born weighing 1 lb. 6 oz.  She is blind in her right
eye
> and very near-sighted in her left.  She has mild CP on her left side.  She
is
> currently in 3rd grade and is doing very well, considering she is learning
> Braille.  She does get PT at school and tries so very hard to do things
just
> like the other kids.  She is having difficulty learning how to ride a
bike.
> She admits to her fear of falling off (I truly am fearful that she won't
be
> able to see cars).  My other daughter, Breanne (twin B) weighed in at 1
lb.
> 15 oz.  She is severely multiply impaired--has CP on her right side, blind
in
> both eyes, 2 shunts for Hydracephalus (had a trache from the time she was
an
> infant but was decannulated in September 1992); seizure tendency (has only
> had 2 to speak of).  Breanne can't do for herself and is in a wheelchair.
> The good news is that she has made alot of progress, but now that the
girls
> are getting older, I am trying to prepare myself for puberty.
>
> In a nutshell, here is my question . . . In Ashley's case, she will be
able
> to learn how to shave and take care of her own hygiene.  In Breanne's
case,
> however, I am wondering about the shaving.  She has gotten a headstart on
her
> sister with the hair growth, so now I'm thinking "My gosh, it's coming!".
> For anyone out there, how did you deal with puberty?  My husband is also a
> wreck about having to deal with it.  Will I need to shave Breanne's arms
and
> legs as all women do as they get older?
>
> Any insight is greatly appreciated.  I look forward to hearing from some
of
> you.
>
> Nancy Butala
> Michigan
>
>
>
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