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St. John's University Cerebral Palsy List
Date:
Sat, 29 Apr 2000 08:12:53 -0700
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Hi Trisha-Regarding the "other stuff"...I also belong to a on line
support group call The Cerebral Palsy Network.  I'm the Regional
Director for California.  That's just a fancy name the owner/moditorator
gave me and one person in every state for our members to conctact.  We
each have a state page with resourse info on them.  Anyway my point
is...we have different groups and scheduled chats be it, parents talking
about the latest therapies, we also have "adults with CP" and "teens
with CP".  They also have scheduled chats at least if not more than once
a week. The teen chats are moderated by one of our Adults with CP and
hosted by a teen.  We have a great group of teens over there as well as
the adults that help us parents.  We have a daily loop that has just
been switched to an egroup.  Because Amber is 15 she will need your
permission to join, but I think Amber would find it safe and enjoyable.
The URL for the main page is http://thecpnetwork.netfirms.com/ I'm sure
that Amber probabley wouldn't want the daily stuff from the parents
<BG>, but I'm sure Dena could set something up for her.  Our teens do
contribute to the loop though when we have parents of younger kids that
are doing things or going through stuff and we need the perspective of a
teen, but only if they want to. Just an option, hope it helps.

Vicki
Who quietly reads everything everyday and you all make me smile :o).

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