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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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Yvonne Craig <[log in to unmask]>
Date:
Wed, 3 May 2000 18:05:03 -0400
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Our youngest son Joseph had cerebral atrophy causing CP and a host of other problems. He also was diagnosed with mild Spina bifida. However, I always assumed it was a coincidental thing - that one had nothing to do with the other.

Yvonne
Mommy to 3 year old triplets: Robert (NDA), Anthony (mod. spastic quad CP) and 
our Angel Joseph {April 14 /97 - Dec. 31 /98} (cerebral atrophy, sev. spastic quad CP, CVI, Infantile spasms, severe developmental delays, mic-key tube, BPD, mild Spina bifida...)
Ottawa, Canada


>>> [log in to unmask] 04/29/00 01:14AM >>>
Beth,

First, welcome to the list. We're alway glad to have new members.
Secondly, we also have our own ways of diagnosing C.P. So beware!!! :)
As our honorary cp'er with PN found out, once we got you., We GOT
you!!!  :)  The third thing I would do would be to to question the
diagnosis of the doctor. because the spinal problems associated with
C.P. that I'm aware of is scoliosis or curvature of the spine... For a
person to have both Spinna Bifida and C.P. would be very rare, I
think... It's not to say It hasn't happened, but in my 45 years of
living with C.P., it hasn't come to my knowledge... How about yours,
Bobby? Elizabeth?   Doctors can be wrong, as I'm sure many on this list
can attest..

Mike
]

Beth Anderson wrote:
>
> Hi everyone,
>
> I'm new here, thought I would say hi - just joined today and am glad to see this
> is a talkative bunch.  I am 'newly diagnosed', I suppose you would say, and I
> have a few questions, that are probably dumb ones!  I am nearly 40 years old
> (will be in June), and was born in 1960 with spina bifida.  I was never told I
> had CP at all - my doctor yesterday wrote it on the sheet of paper I needed to
> get my handicapped tags (placard) for our cars at home and I looked on internet,
> and I saw somewhere that CP is frequently associated with some spinal problems -
> I do not think it mentioned SB by name.  Are there any on here that are spina
> bifida??  Is it prevalent amongst SB people to "get" CP or maybe be born with
> it, and it not be diagnosed?
>
> As to your 'speech' postings - I seem to have a problem, but I am not sure if
> it's CP related - I speak "clearly" do not slur anything, but - when I go to
> speak, sometimes my mouth wants to work faster than my brain, and I tend to
> "ramble" or "stammer"........ is that a problem related to CP (or is that just
> "me"!!)..............
>
> Thanks, and nice meeting you.
> Beth

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