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Sun, 27 Feb 2000 11:54:11 -0800 |
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The drug options I know of are robinal and scopoline sp? patches. They are
systemic drugs-the one made my daughter very pasty and tired. Shawn
>where can i obtain more information about this? i live in Argentina( so
>far..) and work with handicapped children.Saliva is always a problen in
>their social issues.i have read long time ago about some kind of salt in UK,
>that might reduce the excessive effects, do you know something about this?
>i appreciate all the information you can give. Thanks! annie the pt
>-----Original Message-----
>De: Jim Challenor <[log in to unmask]>
>Para: [log in to unmask] <[log in to unmask]>
>Fecha: Domingo 27 de Febrero de 2000 04:38
>Asunto: Re: intro and salivary gland reduction
>
>
>>Hi Shawn,
>>
>>I have a son with major CP (simple description, saves me time when
>>writing). Kristofer is 10 is attending mainstream school and has just
>>started grade 5 this year. He cannot talk and has a lot of trouble with
>>communication for many reasons.
>>
>>A number of years ago we stopped feeding Kristofer orally and moved to a
>>peg and Gtube/button. However after moving this way he continued to have
>>problems with aspiration pneumonia. And the only thing that was still
>>there to cause a problem was the saliva. As a result of a number of
>>trials(failed) and other investigations (including a fundoplication) we
>>found that it was the saliva.
>>
>>Therefore we then had a bi-lateral sub mandibular salivery gland excision
>>and tympanic neurectomy. In our case we have had fantastic results
>>(surgery was Dec 1995) and can say that it has not caused him any untoward
>>results.
>>
>>Kristofer still has adequate salivery production and occassionally still
>>dribbles ( usually involved with response to drugs or seizures).
>>
>>If you need more information, just let me know..
>>
>>Regards
>>
>>Jim
>>>I joined this list because of my daughter who is ten and has fluctuating
>>>cp. I have questions for this group and I am hoping you would please be
>so
>>>kind as to help me with them. The first right now is that I am thinking
>of
>>>having salivary reduction surgery done for her. I have always been
>against
>>>it before. But now that I have heard they can change the direction of
>>>gland and put them down the throat. I tried robinal with her and it
>seemed
>>>to make her pasty and tired. She is in the fourth grade and I don't think
>>>the drooling is helping with her social issues. She speaks and walks with
>>>a hand held but not by herself. Any info or opinion you can give me I
>>>would appreciate. I am concerned about the pain and recovery but also
>>>maybe in the long run she would rather not have to deal with the excessive
>>>saliva anymore either. It gets on her papers and her hair always has to
>be
>>>tied back because it will stick to her chin and all the other reasons.
>>>thanks so much,
>>>Shawn
>>
>>
>>Jim Challenor
>>
>>e-mail: [log in to unmask] "Never Give In,
>>snail: PO Box 742 Lismore. Never Give Up,
>> NSW.2480. Australia. In The End You Will
>Win"
>>Phone: 61 2 66252394 "Unknown"
>>Fax : 61 2 66252394
>>Mobile: 0418 669618
>>
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