hi,

my friend has both cp and sb. her hand is spastic.
Asdis.
At 08:27 30.4.2000 -0400, you wrote:
>This brings up a good point.  Hi Beth, this is Beth the OT.  I would
>definately start by calling back your doctor and discussing your concerns.
>Do you have movement difficulties?  I think that Spina bifida and Cerebral
>Palsy probably could be found together as Spina bifida is a neural tube
>defect and Cerebral Palsy is generally caused by a lesion somewhere in the
>brain.  The two disorders aren't mutually exclusive.  Spina bifida is a very
>common disorder, much more so than cerebral palsy and can run from very mild
>spina bifida occulta to very severe spina bifida myelogecele(sp?  It's early
>Sunday morning and my fingers and brain haven't woken up yet)
>Beth, even if you find you don't have an official diagnosis of cp after you
>talk with your doctor, I believe I speak for the majority here in letting
>you know your still welcome on the list.
>
>Beth the OT
>
>-----Original Message-----
>From: St. John's University Cerebral Palsy List
>[mailto:[log in to unmask]]On Behalf Of Michael H. Collis
>Sent: Saturday, April 29, 2000 1:14 AM
>To: [log in to unmask]
>Subject: Re: hi
>
>
>Beth,
>
>First, welcome to the list. We're alway glad to have new members.
>Secondly, we also have our own ways of diagnosing C.P. So beware!!! :)
>As our honorary cp'er with PN found out, once we got you., We GOT
>you!!!  :)  The third thing I would do would be to to question the
>diagnosis of the doctor. because the spinal problems associated with
>C.P. that I'm aware of is scoliosis or curvature of the spine... For a
>person to have both Spinna Bifida and C.P. would be very rare, I
>think... It's not to say It hasn't happened, but in my 45 years of
>living with C.P., it hasn't come to my knowledge... How about yours,
>Bobby? Elizabeth?   Doctors can be wrong, as I'm sure many on this list
>can attest..
>
>Mike
>]
>
>Beth Anderson wrote:
> >
> > Hi everyone,
> >
> > I'm new here, thought I would say hi - just joined today and am glad to
>see this
> > is a talkative bunch.  I am 'newly diagnosed', I suppose you would say,
>and I
> > have a few questions, that are probably dumb ones!  I am nearly 40 years
>old
> > (will be in June), and was born in 1960 with spina bifida.  I was never
>told I
> > had CP at all - my doctor yesterday wrote it on the sheet of paper I
>needed to
> > get my handicapped tags (placard) for our cars at home and I looked on
>internet,
> > and I saw somewhere that CP is frequently associated with some spinal
>problems -
> > I do not think it mentioned SB by name.  Are there any on here that are
>spina
> > bifida??  Is it prevalent amongst SB people to "get" CP or maybe be born
>with
> > it, and it not be diagnosed?
> >
> > As to your 'speech' postings - I seem to have a problem, but I am not sure
>if
> > it's CP related - I speak "clearly" do not slur anything, but - when I go
>to
> > speak, sometimes my mouth wants to work faster than my brain, and I tend
>to
> > "ramble" or "stammer"........ is that a problem related to CP (or is that
>just
> > "me"!!)..............
> >
> > Thanks, and nice meeting you.
> > Beth