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I had very supportive responses.  Based on these, I e-mailed CSA,CDF and
GIG.  The only response was from GIG.  I waited longer than usual to
summarize, just in case the other groups were short-staffed or on vacation.
I found GIG's response very helpful..What do you think, listees?
Rose Mary in W. Ky.

>From: "GIG" <[log in to unmask]>
>
> Rose Mary,
> I have heard about the ongoing conversation related to Proctor and Gamble.
> I understand the concerns of both sides and feel that we are often our own
> worst enemies. You bring to light some good points.
>
> Because I have not personally followed this discussion, please tell me what
> the products of concern are. If they are skin care products one of the first
> issues is to convince patients that many of them have incorrect
> understandings about what has to be avoided as skin care products, for what
> reasons, and by whom. I have seem this addressed before and have watched
> patients "crucify" experts, rather than learn from them. Blind attacks by
> patients has discouraged many experts from getting involved. I will be the
> first to admit not all medical professionals know a lot about celiac disease
> and DH, however why are people alienating those who want to be our allies?
>
> The manufacturing community is no different. Because people in this country
> are 'law-suit happy', many companies will protect themselves with general
> statements. Can you blame them? As I have said before, and so have
> others...until we as support groups can work together things will take a
> long time to change. I doubt that the FDA, other government agencies or
> manufacturers will take us seriously until we begin to work together and
> speak as one (even if we are many groups).
>
> Cynthia Kupper, CRD
> www.gluten.net